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Old 04-15-2015, 01:51 PM #1
baba222 baba222 is offline
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Originally Posted by canagirl View Post
Hello,

I am thinking about trying gabapentin. I have searched through old posts and see a lot of people have taken it but nobody has talked about how effective it has been or how LONG it worked for them.

Do you take it/have taken it?
How well did it work? significant enough to try?
Why did you stop?
Did it stop working for you? If so, how long did it last? What do you use now for relief?

THANK YOU
It was the first drug I was started on for my symptoms. It helped me get some rest. My SFN ramped up and was all over. I maxed out on it, so then Lyrica. Taken off Lyrica. Now on Amitriptyline 50 mg.
Good luck and hope you get some relief soon.
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Old 04-15-2015, 07:10 PM #2
Ragtop262 Ragtop262 is offline
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A while back I took Gabapentin for a few years, then discontinued it which was no fun (you need to withdraw very slowly).

When I started having twitching & cramping, I agreed to go back on, and it controlled those symptoms well.

All of that was before I started to develop significant nerve pain, so I don't really know if it's currently doing anything for me as far as the nerve pain.

Side effects for me are sedation (which may be a good thing for you if your having trouble sleeping), memory problems (particularly searching for a word or name you want to say but can't remember it), weight gain, and some loss of libido.
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Old 04-15-2015, 10:55 PM #3
canagirl canagirl is offline
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Thanks ragtop262

Why did u discontinue? Do u think it's helping ur pain at all? How long have u been on it? What dosage?
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Old 04-16-2015, 08:47 AM #4
Ragtop262 Ragtop262 is offline
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Thanks ragtop262

Why did u discontinue? Do u think it's helping ur pain at all? How long have u been on it? What dosage?
When I was on it the first time, it was actually an off-label use for controlling anxiety (I couldn't tolerate most of the usual medications they use for anxiety issues). Eventually, I decided that the side effects were not worth the limited benefit I was getting from the drug, so I discontinued. At that time, I think I was taking 1600 mg/day (400 x 4). I tapered down from 4 to 3 to 2 to 1 capsule per day pretty easily. But it was hard to get down to 0 - I had to open the capsules and make my own dosages to bring it down in very small increments.

Currently, I'm on 1800 mg/day. (600 x 3) My neuro suggested going as high as 3600/day, but I don't really want to go any higher if I don't have to. I'm OK with the level of side effects I have now, but don't want them to get any worse, as they surely would at a higher dose. I've currently been on it since last fall. I started taking it before the neuropathic pain started, so I honestly don't know if it's doing anything for the pain or not.

I'm sure you've already figured it out, but none of these medications are magic pills - they all come with side effects. Each of us has to evaluate the symptoms we have, and what level of side effects we are willing to endure to get an improvement in the symptoms of our disease.
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