My skin biopsy was positive. Both ankle and thigh showed significantly low nerve fiber density. Only my motor nerve and larger nerve fibers were normal.

I had originally seen a neuro at Columbia Pres., I work in NYC, and he did the biopsy which was positive, so I went to Dr. Chin already with a positive punch biopsy result. I wanted to look deeper at a other possible causes, though, and I did a lot of research and landed on Dr. Chin.

He did all he could, and I feel confident that he'll help me in any way he can as far as charting and progress or worsening, and if I decide to go on medication, etc.

Ah ok. I'm hoping I don't have to repeat the EMG since I had one done a few weeks ago. I was hoping to get a full immune function workup and test for everything under the sun including any possible viruses. I am guessing this will more on the immunology/pathology side and the neuro could steer me in that direction. I just feel like neurologists don't do as much lab testing as they could.

I also hear Mayo Clinic gets thrown around a lot. Is this a better choice than seeing a neurologist?

I (and many others here) wasn't impressed with Mayo, but I'm sure they will do a ton of tests.

Personally, I think you'd be better off waiting the 3 weeks (that really is NOT very long compared to most specialists) for Dr Chin...Glenn and others all have good things to say about him.

I concur-if you're looking for someone who will be thorough, he's it. Just my two cents.

This is a pretty thorough testing listing:

http://www.questdiagnostics.com/test...ripheralNeurop

Dr. Latov is also at Cornell.
http://weillcornell.org/normanlatov

Thanks guys, only reason why I wanted to see someone soon is because my symptoms seem to be progressing rather quickly. I may consider seeing Chin as well.

That's a ton of tests! I know I got some of them done already through my primary I believe. I was considering Latov but I read some unfavorable things about him, but i'm sure he knows his stuff.

The reason I believe mine could be infection related is because when symptoms started 3 months ago, I remember having night sweats and swollen glands under the neck. No fever or any other infection symptoms. The night sweats only lasted a week. My glands are still a bit swollen but haven't changed in size since the start.