I have had blood tests for sjogrens ANA. anti ro and La CRP and ESR all normal hence her stating I cannot have sjogrens

My podiatrist told me about corneal confocal microscopy which is non invasive test for SNF because even my SNF is only a diagonosis through elimination of everything else the neuro tested for

I can't get the lip biopsy without a Rheumy but she has discharged me.

I don't take antihistamines only once to see if it helped my eyes.

I also have awful dry inflamed eyelids that will not get better 😏

Feeling pretty fed up with it all really

I actually got a referral from a neurologist. Then I went and handed the ENT the script and he said he didn't need it. Turns out I could have just called an ENT (who knows how to do this procedure) and consulted with them and they can do the biopsy and submit. See about your insurance. I could have had mine done months ago if I knew this. I think some dentists, dermatologists and other types can also do the biopsy.

Why can't your primary care physician order the lip biopsy??

If not, then get another rheumy for a second opinion...as your symptoms scream Sjogren's.

Joint pain? Did You check for Lyme?

I am in England so specialist tests have to be requested through consultants, my GP can't request the lip biopsy

I hope my neurologist is going to be of some use on Monday

Does Lyme disease exist in the UK?

I've been having more joint pain in my hands. When I open and close my hand, it doesn't feel 100%. Most of the pain is in the pinky and karate chop area.

Yes, but most ticks in the UK do not carry the bacterium.

Mrs D:

How does one accurately test their Vitamin A level?

Thanks!

David