I would second Debi's suggestion to find a good podiatrist. Mine was very instrumental in getting me to a neurologist and getting me properly diagnosed. They see a lot of SFN and are more compassionate than many neurologists.

In my experience once a neurologist knows you have SFN they wash their hands of you as there is no treatment but the diagnosis does usually put you on the fast track for pain management as next to trigeminal neuralgia it is one of the worst pain syndromes.

They are the only specialist I see anymore as they also prescribe braces.

Just curious as to what type of braces you will get. I know you mentioned orthotics once and they would be custom made I'm sure and they just go in your shoe. AFO (Ankle Foot Orthosis) - braces - are quite different as you know. Thanks for your reply.

They describe them as braces on the prescription, possibly with AFO's but primarily to keep me from rolling in on my arches, and with a Morton's extension to keep this toe from ulcerating. They will come part way up my leg, past the shoe but not much above the ankle. Sort of an orthotic/brace hybrid?
I haven't gone for the fitting yet, this is all I have been told so far. I drag my right foot more than my left so they will probably be different from each other. The prosthetic people will make the final determination.

Let us know what it is and how it goes. Thank you.

My skin punch biopsy was $2,700 and my high-end insurance plan paid $48.