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Old 04-20-2015, 02:11 PM #1
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Littlepaw Littlepaw is offline
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Hi, sorry if you addressed this already but did they check your Vit D level? It is important for nerve function but frequently low and in need of supplementation.

I would encourage you not to give up on finding something aggravating your condition. Neuritis has to start somewhere. Think back if you started anything new before this began. Or take 10-14 days off of a lot of things and see if you have improvement. I had a saphenous neuritis above my medial knee for an entire year that was driving me nuts, buzzed all the way up the leg and had fasiculations. My doctors all shrugged and probably thought I was crazy. I thought I had spread of CRPS.

Turns out I was causing it on the recumbent bike at the gym. I only figured it out after taking 10 days off of working out and realizing it was gone. I got out my anatomy book and found there is a fascial canal where my problem was. Ends up people often get repetition strain in that area. I Added activities back in one by one till I figured out the problem and voila, no more saphenous neuritis now! Oddly, the regular bike is not a problem, only the recumbent so even seemingly minor changes in routine CAN be a problem. I know they want you to do PT but I am wondering about taking a break and seeing if things calm down any before starting that....

Hope you feel better soon, Sending Healing Love
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twitchwitch (04-20-2015)
Old 04-20-2015, 02:44 PM #2
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Quote:
Originally Posted by Littlepaw View Post
Hi, sorry if you addressed this already but did they check your Vit D level? It is important for nerve function but frequently low and in need of supplementation.

No, Not Vit. D. I will ask my doc. about it. Maybe it's included in an infusion.

I would encourage you not to give up on finding something aggravating your condition. Neuritis has to start somewhere. Think back if you started anything new before this began.

Yes! I did find something, and brought it to my neuro's attention. He agreed this could have something to do with it. 2 days before my arm pain started, a real nasty lip herpe broke out. The first one since I was in my 20s (I only had the lip kind, not genital, but not many breakouts at all). I literally felt the virus crawl from my ear area across my right cheek, then onto my lips, and tingle all night long. I had excessive saliva that night, and was creaking out, couldn't sleep, didn't know what that was. In the morning, I had a break out. A very painful one. I remember feeling that same crawling feeling in my neck/shoulder and then boom, lots of pain....then the rest. And my ANAs have always been positive. Not high, and not specific, but always positive.

I know they want you to do PT but I am wondering about taking a break

Hope you feel better soon, Sending Healing Love


Thank you! I am glad you got yours figured out and resolved! They want PT to keep up the muscles so they don't waste.
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- Jul 2013 - Benign Fasciculation Syndrome (BFS)
- Mar 2015 - Spine herniations at C5/C6 and C6/C7
- Apr 2015 - L. Shoulder/Arm Neuralgic Amyotrophy/Plexus Neuritis

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