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Old 04-18-2015, 02:22 AM #1
Neuroproblem Neuroproblem is offline
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The Mri technician wasnt aware of your condition. involuntary movement can be RLS? restless leg syndrome, i had it pretty bad the first few days my neuropathies suddenly appear. I think its also the bodies way to move naturally when still as well though.
I was in an MRI for an hour(i think thats how long it took to see my head), and i felt like i wanted to move constantly, and i also dint have support for my legs, so i had to kept it bent in that position for almost half an hour, until they put a pillow under them to relieve the pressure, this was 2 years before my neuropathy started, and for an unrelated reason(which my current pcp/other doctors used against me). maybe you can have a pillow under your legs, so it can be comfortable

Last edited by Neuroproblem; 04-18-2015 at 03:28 AM.
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Old 04-18-2015, 08:14 AM #2
Susanne C. Susanne C. is offline
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Susanne C. Susanne C. is offline
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Thank you for the replies! I agree that the technician could gave been nicer, my husband believes that it being late Friday afternoon didn't help, but they gave me that appointment,
RLS is a common side effect of CMT, I have had it since I was a child, but it has settled down now. Because this was of the toe it had to be in a very specific position, no pillow possible. which put a lot of stress on short, weakened muscles, hence these were more spasms than RLS. I have no feeling below the knee so my feet could have been tap dancing on mars from my perspective.
It is a hot button issue for me anytime I feel disbelieved. I think it is time to find a psychologist.
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Old 04-18-2015, 12:07 PM #3
zkrp01 zkrp01 is offline
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Quote:
Originally Posted by Susanne C. View Post
Thank you for the replies! I agree that the technician could gave been nicer, my husband believes that it being late Friday afternoon didn't help, but they gave me that appointment,
RLS is a common side effect of CMT, I have had it since I was a child, but it has settled down now. Because this was of the toe it had to be in a very specific position, no pillow possible. which put a lot of stress on short, weakened muscles, hence these were more spasms than RLS. I have no feeling below the knee so my feet could have been tap dancing on mars from my perspective.
It is a hot button issue for me anytime I feel disbelieved. I think it is time to find a psychologist.
use a pressure boot or some form of immobilization? I would hunt for a radiological supervisor and discuss protocols for uncontrolable appendages. I agree w/ you husband, by Friday noon everyone has already checked their brains into get the hell outta here mode. Better luck next time, Ken in Texas.
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