Yes, I have jolts, twitching, and minor fasculations lasting about ten secs at a time. I have them radomly kinda all over my body, especially arms, legs, sides, shoulders, and face including my lip last night. They arent painful, just aggravating. I dont experience much pain at rest, unless I have done a lot. Of course, some days I wake up already feeling weak with "heavy" limbs and clumsy hands but pain is not really intolerable. This is my third month in, so I'm getting better at managing the symptoms. Of course I still have break downs from time too time, but we all do! I have also been able to stay at home while my husband works, so I'm lucky and can take it easy and get rest, especially on days I know I need it. Thinking of you. What it's your treatment plan at this point?

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Right now, I am on gabapentin, working up to 900 per day. For the pain.
I am tapering off the cortisone now, which should have taken care of the inflammation.

Then I'm also in physiotherapy to massage my shoulder/neck, with traction and light exercises.

I am going to ask my doctor for neuro-friendly infusions and my orthopedic for acupuncture. Or maybe he will have some other treatment for me.

I'm sorry you are going through this, I hope for answers and the right treatment plan for you. Please keep us updated!

Exercise my goal is make it to the gym 3-4X a week since walking many times hurts so long distances is out of the question.
I do mainly low impact cardio - stationary bike and water aerobics. The gym has one of those full body workout areas that takes about 10 minutes to complete that I do 1-2X a week.

I've been sent back to PT recently and many of the stretches they have me trying have really aggravated my back.

I do know you have to keep moving as much as possible.

my orthopedic for acupuncture

Please be careful with acupuncture! My practitioner caused serious damage to me and I am suffering terribly. when I spoke to her about it she claimed she was going "deep" to help me! However, she is in complete denial about what happened.