My family and my husband are finding it really hard to deal with me. Like I said before I literally cry and yell all day. Every thought is of this pain. I'm losing them... My husband thinks I'm on the verge of giving him a heart attack. My parents hurt so much for me that they can't be around me much. My sister just yells at me now, we don't talk much anymore....
Please how do I become normal again u guys... I'm desperate I don't want to lose my family too. I'm so mentally and physically tired. Has anyone ever checked into a rehab therapy type place? What do they do? Was it helpful? Do they force meds on u? I'm scared about more depression meds the nortriptiline is already making me jerk more and more.
I don know how I became this person. I was so laid back and non caring before this. No problems at all. Know I feel this physical illness has made me mentally ill and I can't handle this OCD depression and anxiety on top of the excruciating pain.
Has anybody become like me? How do u change ? I feel like I need someone Jo have felt like me to walk and talk me through everyday so I can try to recover at least mentally.

You really really really need some rest.....you can not take on this monster all at once; you have to concentrate on getting sleep; realize you will have pain when you wake up...then you need to bring down your pain level...that isn't pain free but drop a degree of pain you are in; Stop....no more for now; sleep and a notch down in pain....
Family needs to understand the magnitude of you TRUE pain; Your ability has been compromised and this is NEW for you; You need to put limits on what you can do and DON'T go over even if you feel okay...this will add to your stress which will increase your pain and make you more
We believe you, we understand you and we would hug you if we could...(we know it hurts too much to be touched)
Keep up the fight......

ok...I'm Really on edge right now...I thought I was consumed by this before but yesterday and today have been unreal. Tomorrow's appointment feels light years away. My appointment on Thursday for neurotherapy/biofeedback seems really really far away and I can't function minute to minute. I drag myself to work because staying home is worse. I am BARELY functioning at work it you can call it functioning.
Please, please if any of you have felt the way I have can you friend me? ( I know there are people that must have felt at least a little bit as crazy as me) can we set up a time to chat online through the forum today?

I've tired to chat with you...it says you are away....I'm here if you wanna chat....

I was going to ask if you considered anything like biofeedback, or even hypnosis, and some antidepressants may enhance the pain med effectiveness.

Have you had any sort of physical therapy at all - ultra sound, electric stim (IF stim, TENS ets), therapeutic massage or low level laser also called soft/cold laser.
Some chiros have those lasers it might be worth a try to find one and see it LLLT helps.

[QUOTE=Jo*mar;1137029]I was going to ask if you considered anything like biofeedback, or even hypnosis, and some antidepressants may enhance the pain med effectiveness.

I have a biofeedback appointment on Thursday and Friday. haven't had any to date so hopefully this is helpful. They have me booked in for once a week for the next for weeks. I said I felt I needed more than that but they said we can discuss that after my initial assessment.

Have you had any sort of physical therapy at all - ultra sound, electric stim (IF stim, TENS ets), therapeutic massage or low level laser also called soft/cold laser. I have something similar to tens which is what set off a lot of my stuff, tingling, prickling, electrical feeling, burning (but a WAY diff burning than what's happening now. and that burning settled into something that I could deal with). I tried massage and it felt really good at the time but later and for a few weeks I had a major flare. A physiotherapist tried a laser on my elbow and should and wrist (arm that carpel tunnel was diagnosed on) but that didn't help...

ahh, I don't what I am doing wrong. I tried to chat too...

Hi canagirl
My brain's too tired today to write much but I knew of this website page which you might direct your family & friends to. If they read it - it might help them with understanding what you are going through and how they can help you.
Stay strong.

http://www.butyoudontlooksick.com/ar...-spoon-theory/

All I can say is that the beginning is very hard and stressful. I cried everyday for a long time, but I tried to to keep my crying to only a little at the end of the day so it wasn't wrecking me and my family constantly. Try to contain it to a time and place if you can. Breathe deep and tell yourself the crying hour is later. Crying and yelling is exhausting and ramps up a lot of neurochemicals you don't want all the time right now. it also makes our loved ones miserable. I ended being strong for my family because for me it was easier to keep myself in check as a gift to them.

Don't expect yourself to accept this right now. It is early, I wouldn't even worry about that yet. You don't know where you will be in the future. There is still the possibility of healing. Don't catastrophize. Just Work on accepting that you don't know what's happening but are doing everything you can to find out. Put your focus on getting through each day. Heck sometimes I just had to focus on getting through five minutes calmy. Get help with this if you need it.

Some of what helped me at first was a lot of distraction until I was at a place where I had enough info and could start to deal with things. watch a movie, read a mindless novel, play Angry Birds or Chuzzle. Anything to keep your mind from going into OMG mode. I also did a lot of praying, still do, for myself and others, for the world, for the environment. It is a positive activity I can do any time, no matter how bad I feel and it helps. I am praying for you too...right now and every day.

Sending Healing Love, Littlepaw

Crying and yelling is exhausting and ramps up a lot of neurochemicals you don't want all the time right now. it also makes our loved ones miserable.


Some of what helped me at first was a lot of distraction until I was at a place where I had enough info and could start to deal with things. watch a movie, read a mindless novel, play Angry Birds or Chuzzle. Anything to keep your mind from going into OMG mode. I also did a lot of praying, still do, for myself and others, for the world, for the environment. It is a positive activity I can do any time, no matter how bad I feel and it helps. I am praying for you too...right now and every day.

Sending Healing Love, Littlepaw [/QUOTE]

I know the crying and yelling is ramping up my neurochemicals I just can't stop. I WANT TO. that's why I feel so childish...why can't I just stop? I do it anywhere and everywhere. Grocery shopping, banking etc etc. it's EMBARRASING. that's why I was asking about a rehab therapy type place. the way I am responding and acting is ridiculous.

I try to use distractions but two minutes into doing anything and I can't ignore the pain anymore. Going out in public sends me into a crying panic attack because I see women pushing their baby strollers and living such a happy life. I can't handle that, it's supposed to be me!

My aunt has been praying for me multiple times a day. I try to believe too, and say my prayers, read my books but why hasn't my healing manifested yet? so it's hard to have faith.