[QUOTE=madisongrrl;1139127]My twitching reduced 90% also on the gabapentin-nortriptyline combo. I was on that combo for almost year before I tried stopping the nortriptyline. I went 2 months without the nortriptyline and it was a terrible mistake. Burning all over the place and I couldn't function well.

madisongirl,

so.. would you say gabapentin does a better job at controlling the twitching (and maybe parathesias) than controlling the burning?
And that nortriptyline is the med that does a good job of controlling your burning?

When I say 90% I mean I went from intense and frequent twitching all over my body to hardly twitching at all now. Understand it took almost 1 year of time while taking medication.


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I think they probably both help with the burning.


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Well that's good to hear that it actually reduced the number of twitches. All in all in took about a year to get 90% relief... oh my! How long were you on it before you noticed that your twitches started to reduce?

I've been on gabapentin since Feb 2014. The twitching didn't start to settle down until Oct/Nov 2014. Now I can say I hardly twitch at all. One twitch here and one twitch there. I'll take it.

I added nortriptyline in April or May 2014. I stopped it for several weeks this winter - specifically prior to my ENT appointment (it can mess up the ENTs testing). Then I decided to put it back in because I had felt significantly worse. My pain has been somewhat manageable and I have been very functional at work. I still get burning, facial pain, dizziness, tingling, the feeling the someone is gripping my spine or pushing a window screen into my back.....but all these symptoms are better controlled with my medication combo. And I can now be rational about what steps I'm going to take next to figure out what the heck is going on with my body.

I keep thinking I have pinched nerves. At the very least around my elbows. The area around my elbows is so sensitive that resting my arms on a table or desk sends tingles and small amount of pain down my arms into my hands. I also have a something twitching near my right elbow (I don't know, muscle, nerve, blood vessel.). It feels different than all my other twitches (it sends tingles all on its own) and I have had this twitch for over 6 months. It gets really bad when I am sitting at a table or desk with my arms up. Is this normal neuropathy or pinched nerve? I did have a couple ncv/emg but they all only testing my lower arm and leg (below elbow and below knee).