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Old 06-16-2007, 02:05 AM #1
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Default How do we get the word out?
If it is estimated that 10-20million Americans have Nueropathy and yet only about 7% have ever heard of it, how do we raise awareness of this chronic neurological disease? Any body have any ideas?
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Old 06-16-2007, 07:00 AM #2
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Lightbulb get it on Oprah....
Until she gets it, we will have to wait, I guess.

If you could have seen the blitz on the questionable remedy called Airborne that she started, you'd understand.
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Old 06-16-2007, 07:33 AM #3
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Now that is the best idea yet.

I'm going to write my letter to Oprah (and to Dr. Phil, and to Montel Williams).

Can't hurt!!

Melody
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Old 06-16-2007, 11:12 AM #4
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That is a great idea. I hope you do write to them. I will too. Anyone else want to join in??
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Old 06-16-2007, 12:50 PM #5
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We should ALL write them. I'm game - how do we find the address info? Any way we can avoid being put in a big pile of fan mail?

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Old 06-16-2007, 03:34 PM #6
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Until we get someone famous to admit it (Andy Griffith has PN & I think Mary Tyler Moore - as a result of her Diabetes- but they won't talk about the PN)
and steps up like Michael J Fox with Parkinson's - we won't get the coverage we deserve.
I hope the letters may motivate someone, but I think unless you can get someone with a severe case to be a 'poster gal/guy' the interest just ain't there.
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