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Old 04-24-2015, 07:16 AM #3
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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Yes, it is the primary reason I am on heavy pain meds. The feeling is like iron rods are being hammered on inside my legs and it feels like it is coming from the bones. But sensory motor neuropathies play tricks on you- it is hard to tell what is a pain signal gone awry and what is due to weakened muscles trying to carry a normal load.
I also have extensive arthritis in spine, hips, knees, hands, neck, so it all gets mixed up.
Definitely a deep aching feeling, often with sharp shooting pain. I have been on record with this type of pain in one way or another for 15-20 years. Before the CMT diagnosis (2010) we thought it was varicose veins, I have had phlebitis, but I always had the feeling I would eventually lose the use of my legs, something just wasn't right and was getting worse.
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