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The neuropathy is in my tongue now.

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Old 04-24-2015, 03:51 PM #1
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Originally Posted by mrsD View Post
The tongue tingling is mentioned as part of brain lesions --as a symptom.

Tumors, stroke etc., MS... all CNS causation. It is best to be aware of that... so you can get help ASAP if it worsens etc.
Oh I'm sure MS can cause the issues also, I'm just saying PN can also cause it. It was one of my symptoms, and my neuro confirmed for me that it can be part of PN.

I definitely agree that an MRI is important no matter to rule out MS.
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Old 04-24-2015, 04:02 PM #2
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Lightbulb
Also, many of the cranial nerves go thru the cavernous sinuses
in the skull...these also carry blood vessels. This can get very complex, and I don't know all the details, about it.

But infections can penetrate to these cavities (they are not the same as the sinuses we are more familiar with). The infections can arise on the face where certain areas drain in that direction.
(often called the "triangle of death")

http://en.wikipedia.org/wiki/Cranial_nerves

http://en.wikipedia.org/wiki/Cavernous_sinus

There was a very serious Mystery Diagnosis involving this special sinus area... involving the eye.
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Old 04-24-2015, 04:30 PM #3
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Lightbulb
Hint== the speed with which you got an appointment with a neuro is proportional to the severity of the symptom you reported.

Keep that in mind.
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Old 04-24-2015, 05:39 PM #4
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Originally Posted by mrsD View Post
Hint== the speed with which you got an appointment with a neuro is proportional to the severity of the symptom you reported.

Keep that in mind.
Maybe I should tell the neuro appt. booking dept. that my tongue is tingling? 5 mths since referral and still waiting.
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Old 04-24-2015, 07:27 PM #5
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Maybe I should tell the neuro appt. booking dept. that my tongue is tingling?
Great idea. And then once you get in you can say "uh, I accidentally bit my tongue, that symptom is resolved now but I do have these others…"

My first neuro took several weeks to get in, all the others were 3-4 months and I was having terrible symptoms that landed me in the ER. I took the earliest available neuro and he turned out to be awful.
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Old 04-24-2015, 07:24 PM #6
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Originally Posted by mrsD View Post
Also, many of the cranial nerves go thru the cavernous sinuses
in the skull...these also carry blood vessels. This can get very complex, and I don't know all the details, about it.

But infections can penetrate to these cavities (they are not the same as the sinuses we are more familiar with). The infections can arise on the face where certain areas drain in that direction.
(often called the "triangle of death")

http://en.wikipedia.org/wiki/Cranial_nerves

http://en.wikipedia.org/wiki/Cavernous_sinus


There was a very serious Mystery Diagnosis involving this special sinus area... involving the eye.
Makes me really wonder if I should go with the mad scientist lyme doctors year of antibiotics.
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Old 04-24-2015, 07:28 PM #7
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Default 7 months ago had brain and spine MRI and spinal tap
They didn't detect MS then, but I understand sometimes it takes time to show up. I am scared and I am going to go meditate and pray but first I will watch Netflix. Thanks for the thoughts. Y'all are awesome peeps.
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Old 04-24-2015, 09:28 PM #8
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Netflix will help.
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Old 04-24-2015, 07:25 PM #9
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Originally Posted by ellsac View Post
Oh I'm sure MS can cause the issues also, I'm just saying PN can also cause it. It was one of my symptoms, and my neuro confirmed for me that it can be part of PN.

I definitely agree that an MRI is important no matter to rule out MS.
I hope. Its just so weird how this is spreading.
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