I'm so sorry. All this stuff is terrible, but it makes it even more difficult when you can even have a dang cold beverage!

I have tingling, twitching and burning in the sides of my face by my ears along cheeks all the way toy mouth and front pArt of my tongue. Lately there are times where I feel intense pressure squeezing the sides of my face together. If it makes u feel better I have had a head and neck mri. Dr says no ms only herniated disc in neck.

I have this too. Also herniated disks between 5-6-7. I think I have accepted that the disks are not the problem. I don't see how it can cause damage to the nerve fibers all over my entire body.

One of my neuros seems confident that I have sjogrens so I am also on a sjogrens forum. I asked about the pressure/pain on the sides of my face and ears and many people got back to me saying that it is the attack on the parotid gland and saying it is "normal" for sjogrens. Also, many people got back to me saying that their onset was acute and rapid before it settled down and now they can cope, but have flares.