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#1 | ||
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Junior Member
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Thanks for your replies (above).
I have already ordered from Amazon the cream, and will keep in mind the other suggestions given. As I also have myasthenia gravis, (MG)which is fairly well controlled with some hefty MG meds. The problem with MG is that it can be exacerbated, even with fairly good medicine protocols, by factors including stress, infection, pain, etc. Pain! Yikes - the pain I have been feeling and the burning, etc. on my feet have at times, been excruciating. And my MG has been not quite as controlled during these moments. Note; MG can affect breathing; I have been hospitalized a few times due to MG breathing issues (called a myastenia gravis crisis). I appreciate all the info I can get from those here who have PN. Because I really need to try to get this PN under control, so it doesn't exacerbate the MG. Sigh............... I am not sure how much my neuro knows about PN, nor my internal med doc. Both have good poker faces; and both have seen me with MG crisis situations, and I was really very very ill. So far, I have just been dx'ed based on symptoms reported. Basic blood work has come back ok - just added B12 blood work which I had done Friday. Question: WHO treats PN? Neurologists or rheumotologists (sorry about spelling). Or? Just trying to get some info from those who know The people here. Thanks in advance for further replies, and again for the ones already given. SoftTalker (my username because of how MG affects my voice) Hmm....... SoftWalker = could very well become my username for this PN group, based on how my feet are feeling. |
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#2 | |||
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Member
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SoftWalker...way to keep your sense of humor
My neurologist is the one my primary care doc yields to for treatment and monitoring of my neuropathy. He's the one who prescribed gabapentin for me which I took for awhile, but have since stopped. I think I would have needed to up the dosage to get relief, and just decided to try to adjust and try other things before going that route. An integrative med doc I saw briefly, though, was the one who prescribed the lidocaine patches and told me that alpha lipoic acid has been known to help small fiber neuropathy. I think it has helped me some in that I don't have the stabbing nerve pain as often as I once did. That's something you might want to consider if it doesn't conflict with your other meds. |
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"Thanks for this!" says: | SoftTalker (04-27-2015) |
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#3 | ||
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Member
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Quote:
Generally, a neurologist treats PN. However, PN can have many, many causes - and if the cause is determined or suspected to be inflammatory or autoimmune in nature, it may be appropriate to be treated by a rheumatologist. |
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"Thanks for this!" says: | SoftTalker (04-27-2015) |
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#4 | |||
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Wisest Elder Ever
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Well, I do hope you are taking some methylB12 to normalize things.
Some drugs (immune suppressants) can cause neuropathy. You need to check on them. http://www.drugcite.com/ This is one internet site with postmarking data on it. The best way is to go on PubMed (like at the top of the page) and type in the generic name for each of your drugs and the qualifier "neuropathy" and see if any reports show up there.
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"Thanks for this!" says: |
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