--for completely personal and selfish reasons, LOL.

I'm glad your autonomic symptoms have improved markedly. In a lot of acute onset neuropthies, the healing process recapitulates the damage process, such that what is last damaged is last to heal, and it can often feel like the original damage process; I always wondered if your autonomic symptoms were part of the process of your autnomic system attempting to re-wire itself after damage--damage you may not have noticed as much originally as you were dealing with all the OTHER symptoms. (Admittedly, this is more speculation than certainty.)


Thiamine deficiency can in some cases casue an acute neuropathy, but with the body-wide distribution of your symptoms I'd more likely suspect an autoimmune molecular mimicry process, too (especially since you did not seem to experience other symptoms of a fairly sudden thiamine loss, such as dementia/mental status changes or ataxia). Still, many times additions of appropriate supplements give our bodies more raw materials for healing, even if we were not technically deficient perviously. And if they reduce symptoms, they are well worth it.

I am so glad for you. Since you find the thiamine useful, it is pointing to a
thing you should always watch. The enzymes that use thiamine also metabolize alcohol and some drugs (antibiotic metronidazole). So if you have a genetic weakness in this system, you need to watch alcohol consumption as well as vinegar, and the few drugs. You may have to increase your thiamine to accommodate the things you consume.

Some drugs deplete thiamine:
Lasix (furosemide) and other diuretics
Sulfa drugs
most antibiotics
Zonegran (an anticonvulsant)
Theophylline

I think everyone on this board should try thiamine...just because it is so simple, and can work. It is not expensive or dangerous in any way. And it does work (works for me). Especially for burning type feelings.

I am so glad you are feeling better. That is what this board is for!

I wanted to read this thread first to see who had recovery. Not to see how they did (that came later ) But to see who. And it's Aussie! Wonderful, Wonderful, Wonderful!!!!

And I'm so glad it was so easy to do for you. I'm just sorry you had to suffer so long. This is wonderful news and a great way to start my morning!

Billye

It's always great to hear about improvements Aussie. Keep it up!

such good news. I hope there's lots more to come.

Congratulations Aussie!
Great news to hear that you are recovering and continue to do so. All the best for a steady and continued improvement.
Alkymst

I appreciate your well wishes and encouragment. I thought it crucial to post regarding my recovery, as I was profoundly affected by this illness. I hope and pray that there are more members who experience an ease or recovery of their symptoms.

Thanks to all!

It's well known that when someone is healing from an injury or illness certain vitamins and supplements greatly aid in healing and can even speed healing. Vit C, E, Calcium, etc. So it would make sense that vitamins that affect the nerves and such would have the same effects for healing damage to the nervous system. So you're right on about the raw materials even when there isn't a known deficiency.

I'm so happy for you and wishing you continued relief.

Hi Aussie99

I am very pleased for you and hope very much that the improvement is permanent.

Maybe I missed this in another of your postings but I would just like to know when you started with the thiamine and have you kept it at 200mg all the time?

Tony