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Old 05-15-2015, 08:25 PM #1
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If I ever get IVIG i sure hope it works. No other options really. And I got scared of prednisone after seeing a bunch of youtube vids about it. No thank you! My first neuro prescribed me 60mg daily! After doing my research I tossed the prescription out.
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Old 05-16-2015, 06:52 PM #2
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My IGG and IGM were both very high, and I was on IVIG. The IVIG was used to modulate the immune system in my case.
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Old 05-17-2015, 12:56 AM #3
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Originally Posted by northerngal View Post
My IGG and IGM were both very high, and I was on IVIG. The IVIG was used to modulate the immune system in my case.
Good to know. My levels are on the higher end as well. How much did you improve?
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Old 05-17-2015, 02:49 PM #4
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With IVIG, plasmapherisis and rituxin it is believed the immune attack on my nerves was stopped.
I'm not 100% sure which one stopped it, or if it may have been the combination of them all. I did not "get better" or regain any lost nerves. I just stopped progressing, with the nerve damage staying in my lower legs/feet.
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Old 05-17-2015, 04:51 PM #5
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Originally Posted by northerngal View Post
With IVIG, plasmapherisis and rituxin it is believed the immune attack on my nerves was stopped.
I'm not 100% sure which one stopped it, or if it may have been the combination of them all. I did not "get better" or regain any lost nerves. I just stopped progressing, with the nerve damage staying in my lower legs/feet.
Hi Northerngal, can I ask how you know that the attack had officially stopped? was it judged solely by the fact you felt it wasn't progressing?
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Old 05-17-2015, 06:05 PM #6
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Hi Northerngal, can I ask how you know that the attack had officially stopped? was it judged solely by the fact you felt it wasn't progressing?
I did not feel like I was progressing and the emg/ncv tests had stayed the same.
I'm still afraid that it one day might progress, but try not to worry or think about it unless it starts happening.
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Old 05-18-2015, 08:47 PM #7
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Seems IVIG is tough to get approved by insurance. How do people get approval for PN if its not CIDP or MMN? Those seem to be on the "approval" list for most insurance companies. Is there a workaround?
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