Reply
 
Thread Tools Display Modes
Old 05-17-2015, 06:05 PM #1
northerngal northerngal is offline
Member
 
Join Date: Feb 2011
Posts: 179
10 yr Member
northerngal northerngal is offline
Member
 
Join Date: Feb 2011
Posts: 179
10 yr Member
Default

Quote:
Originally Posted by JoannaP79 View Post
Hi Northerngal, can I ask how you know that the attack had officially stopped? was it judged solely by the fact you felt it wasn't progressing?
I did not feel like I was progressing and the emg/ncv tests had stayed the same.
I'm still afraid that it one day might progress, but try not to worry or think about it unless it starts happening.
northerngal is offline   Reply With QuoteReply With Quote
Old 05-18-2015, 08:47 PM #2
Tunaboy's Avatar
Tunaboy Tunaboy is offline
Member
 
Join Date: Mar 2015
Location: NYC
Posts: 149
10 yr Member
Tunaboy Tunaboy is offline
Member
Tunaboy's Avatar
 
Join Date: Mar 2015
Location: NYC
Posts: 149
10 yr Member
Default

Seems IVIG is tough to get approved by insurance. How do people get approval for PN if its not CIDP or MMN? Those seem to be on the "approval" list for most insurance companies. Is there a workaround?
Tunaboy is offline   Reply With QuoteReply With Quote
Old 05-18-2015, 09:31 PM #3
en bloc's Avatar
en bloc en bloc is offline
Senior Member
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
Default

If you have a positive skin biopsy for SFN then getting authorization for IVIG is easier. Without it, it's very hard...unless you have other confirmed Dx.
en bloc is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Tunaboy (05-18-2015)
Old 05-18-2015, 09:31 PM #4
northerngal northerngal is offline
Member
 
Join Date: Feb 2011
Posts: 179
10 yr Member
northerngal northerngal is offline
Member
 
Join Date: Feb 2011
Posts: 179
10 yr Member
Default

Quote:
Originally Posted by Tunaboy View Post
Seems IVIG is tough to get approved by insurance. How do people get approval for PN if its not CIDP or MMN? Those seem to be on the "approval" list for most insurance companies. Is there a workaround?
I believe you would have to have some sort of diagnosis that involves the immune system. Even then, only certain ones are approved for IVIG. If your neuropathy is not caused by some sort of immune system malfunction then most likely the IVIG wouldn't make a difference.
When unsure some doctors like to try 3-4 rounds to see if it makes a difference. But to do this they need to give you a diagnosis that your insurance will cover.
If it's questionable that your neuropathy immune related then ask your Dr. Dx you with CIDP to get it covered.
northerngal is offline   Reply With QuoteReply With Quote
Old 05-18-2015, 10:22 PM #5
Tunaboy's Avatar
Tunaboy Tunaboy is offline
Member
 
Join Date: Mar 2015
Location: NYC
Posts: 149
10 yr Member
Tunaboy Tunaboy is offline
Member
Tunaboy's Avatar
 
Join Date: Mar 2015
Location: NYC
Posts: 149
10 yr Member
Default

Quote:
Originally Posted by northerngal View Post
I believe you would have to have some sort of diagnosis that involves the immune system. Even then, only certain ones are approved for IVIG. If your neuropathy is not caused by some sort of immune system malfunction then most likely the IVIG wouldn't make a difference.
When unsure some doctors like to try 3-4 rounds to see if it makes a difference. But to do this they need to give you a diagnosis that your insurance will cover.
If it's questionable that your neuropathy immune related then ask your Dr. Dx you with CIDP to get it covered.
Not sure if my doc would do that, but in addition to that, I think the insurance would want to see EMG's and other lab results to prove it. I have UHC.
Tunaboy is offline   Reply With QuoteReply With Quote
Old 05-18-2015, 10:57 PM #6
en bloc's Avatar
en bloc en bloc is offline
Senior Member
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
Default

Yep, you are correct!! Due to cost, most insurance Co's want proof...labs AND test results (skin biopsy EMG/NCS, etc).
en bloc is offline   Reply With QuoteReply With Quote
Old 05-20-2015, 12:59 PM #7
hopeful hopeful is offline
Member
 
Join Date: Aug 2009
Posts: 914
15 yr Member
hopeful hopeful is offline
Member
 
Join Date: Aug 2009
Posts: 914
15 yr Member
Default

I'm actually laying on my sofa after having IVIG the last two days. I've been getting them for about a year and a half. I wasn't sure if they were working and I stopped for a few months last summer. I went into a flare after a while. It appears to be working for me.

The treatment is a little hard for me. It feels like a war is going on in my body for a few days but then I start to feel better. My neurologist had a hard time getting it approved so my rheumo tried and got it approved.

How my doctor explained it was the IVIG fights my own antibodies to get them off my nerve endings for a while. It's is suppose to slow down or halt the progress of nerve damage.
hopeful is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Ivig huntress Myasthenia Gravis 8 03-08-2014 01:41 AM
To IVIG or not to IVIG - that is the question Needananswer Myasthenia Gravis 14 11-14-2013 11:13 PM
Ivig debbiehub Peripheral Neuropathy 1 05-18-2011 06:33 AM
Ivig tysondouglass Myasthenia Gravis 2 04-21-2011 07:24 AM
IVIG help tnalawson Myasthenia Gravis 1 07-14-2010 10:57 PM


All times are GMT -5. The time now is 07:55 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.