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#1 | ||
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Quote:
I'm still afraid that it one day might progress, but try not to worry or think about it unless it starts happening. |
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#2 | |||
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Member
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Seems IVIG is tough to get approved by insurance. How do people get approval for PN if its not CIDP or MMN? Those seem to be on the "approval" list for most insurance companies. Is there a workaround?
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#3 | |||
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Senior Member
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If you have a positive skin biopsy for SFN then getting authorization for IVIG is easier. Without it, it's very hard...unless you have other confirmed Dx.
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"Thanks for this!" says: | Tunaboy (05-18-2015) |
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#4 | ||
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Member
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When unsure some doctors like to try 3-4 rounds to see if it makes a difference. But to do this they need to give you a diagnosis that your insurance will cover. If it's questionable that your neuropathy immune related then ask your Dr. Dx you with CIDP to get it covered. |
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#5 | |||
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#6 | |||
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Senior Member
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Yep, you are correct!! Due to cost, most insurance Co's want proof...labs AND test results (skin biopsy EMG/NCS, etc).
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#7 | ||
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Member
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I'm actually laying on my sofa after having IVIG the last two days. I've been getting them for about a year and a half. I wasn't sure if they were working and I stopped for a few months last summer. I went into a flare after a while. It appears to be working for me.
The treatment is a little hard for me. It feels like a war is going on in my body for a few days but then I start to feel better. My neurologist had a hard time getting it approved so my rheumo tried and got it approved. How my doctor explained it was the IVIG fights my own antibodies to get them off my nerve endings for a while. It's is suppose to slow down or halt the progress of nerve damage. |
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