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Old 05-14-2015, 05:36 AM #1
KnowNothingJon KnowNothingJon is offline
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I just wanted to ask how your symptoms compare to a month ago? Are you writing a journal? It can take a lot to distill what is useful over time. An example? Well, I have about three years (with a few "oh the humanity pauses involved) of journal. Pain scale just doesn't have the reverb I hoped and I stopped that after a few months. Yesterdays three feels like todays one in the mirror.

I usually note odd changes or that it id day so and so of this muscle in my calf soasming bad enough my leg is turning in. That sort of stuff.

I'm pulling for some relief for you.

Jon
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Old 05-14-2015, 06:06 AM #2
glenntaj glenntaj is offline
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Default I wouldn't think--

--that benign fasciculation syndrome and small fiber neuropathy are quite the same thing, as small-fiber neuropathy refers specifically to dysfunction of small, unmyelinated and thinly myelinated sensory nerves and fasciculation involves muscle, and even the smallest muscles are ennervated by more thickly myelinated nerve fibers.

There's nothing that says, though, that a similar originating process or etiology may be behind both in some cases. Moreover, it is common to have mixed types of neuropathy, in which both myelinated and unmyelinated fibers are involved. Often, a process that attacks the axon--the nerve fiber itself, instead of the myelin covering--will affect both small and larger fibers. (Small-fiber syndromes, by definition, are axonal; larger fiber syndromes can be axonal, myelin-based, or both.)

Last edited by glenntaj; 05-15-2015 at 06:00 AM.
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Old 05-14-2015, 08:17 AM #3
Ragtop262 Ragtop262 is offline
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Quote:
Originally Posted by glenntaj View Post
--that benign fasciculation syndrome and small fiber neuropathy are quite the same thing, as small-fiber neuropathy refers specifically to dysfunction of small, unmyelinated and thinly myelinated sensory nerves and fasciculation involves muscle, and even the smallest muscles are ennervated by more thickly myelinated nerve fibers.

There's nothing that says, though, that a similar originating process or etiology may be behind both in some cases. Moreover, it is common to have mixed types of neuropathy, in which both myelinated and unmyelinated fibers are involved. Often, a process that attacks the axon--the nerve fiber itself, instead of the myelin covering--will affect both small and larger fibers. (Small-fiber syndromes, be definition, are axonal; larger fiber syndromes can be axonal, myelin-based, or both.)
I suppose you are right. BFS is by definition a benign condition which involves the motor neurons but does not include any damage to them. The neurons are firing but it is unclear why. Maybe it would be more appropriate to just say that BFS can be a symptom of SFN - rather than to say they are the same thing.
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Old 05-14-2015, 08:26 AM #4
canagirl canagirl is offline
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Quote:
Originally Posted by KnowNothingJon View Post
I just wanted to ask how your symptoms compare to a month ago? Are you writing a journal? It can take a lot to distill what is useful over time. An example? Well, I have about three years (with a few "oh the humanity pauses involved) of journal. Pain scale just doesn't have the reverb I hoped and I stopped that after a few months. Yesterdays three feels like todays one in the mirror.

I usually note odd changes or that it id day so and so of this muscle in my calf soasming bad enough my leg is turning in. That sort of stuff.

I'm pulling for some relief for you.

Jon

I have on and off but not right now. It makes me really depressed to write things out and sends me to a mental breakdown. Plus, none of my neuros care and don't let me tell them all my symptoms antway. They look annoyed when I pull it out and don't let me past the first few symptoms
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