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Old 05-14-2015, 07:50 AM #1
Ragtop262 Ragtop262 is offline
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Originally Posted by janieg View Post
Ragtop,

In all your reading about BFS, do you know if it's common/uncommon or unheard of to just have it in just one part of your body, like say your left leg?

Thanks.
Many of the BFS'ers talk about "hot spots" - an area that has the highest concentration of fasciculations. But, for many people the hot spots move around and I would say that very few had the symptoms limited to one specific area. Again, like SFN - the symptoms can wax and wane, change location, etc.
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janieg (05-14-2015)
Old 05-14-2015, 10:29 AM #2
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janieg janieg is offline
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Quote:
Originally Posted by Ragtop262 View Post
Many of the BFS'ers talk about "hot spots" - an area that has the highest concentration of fasciculations. But, for many people the hot spots move around and I would say that very few had the symptoms limited to one specific area. Again, like SFN - the symptoms can wax and wane, change location, etc.
Ok, thanks. I ask because I've had neurological symptoms in my left leg since 1986. It consisted of paresthesia and twitching mostly, but was confined to my left leg for 27 years. Then on Nov. 10th, 2013, I woke up, and everything changed. I had classic SFN symptoms in both legs and other neuro sensations body-wide.

I'm so weird.
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Old 05-14-2015, 12:53 PM #3
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I see. I record for myself and to note progression, possible food connections, and so on.


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Old 05-14-2015, 01:04 PM #4
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I have the vibrations, noticeable at night when I'm going to bed and now it's present in the morning when I get up. When I'm up and around I don't notice it. I also have benign fasiculations. I have a mixed bag of large & small fiber neuropathy. The muscles in my left foot have motor neuropathy, so no surprise they twitch. Elsewhere, I have twitches come and go in different patterns and strengths. I'm told these are benign and just a product of an overactive (read messed up) nervous system.

I had the 1 hour oral glucose tolerance test along with hA1C both were normal. I'm doing a low carb gluten free diet anyway. Can't hurt!
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Idiopathic Sensorimotor Polyneuropathy
Atypical Migraine
Chiari 1 malformation 7 mm
PLIF L5-S1 Sept. 2013

Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis.

Last edited by jenng; 05-14-2015 at 01:07 PM. Reason: spelling
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