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Old 05-21-2015, 01:00 PM #1
zkrp01 zkrp01 is offline
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zkrp01 zkrp01 is offline
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Thumbs up Kindred Spirits

Hi Maryoochi, sorry you are in torment. Many here deal with that. Your DPN diabetic periferal neurapathy is one of about a hundred or so varieties. Some things span all types. Sense of loss for instance, some posts dedicated to this subject only. Pain driving people to depression. Sleep being essential for healing. Anger-oh boy-Anger. Plus if you are prone to depression already you need to pick up some tools to help you deal with what is happening to you. The magnates here have not climbed the mountain and whipped the big bear, but they wade in every day head down and swinging. That is the help that can carry you to a different situation. Things will not always be the way they are right now. Symptoms change, move, go away, come back. Your tolerance will change also over time. Searching for difinitive diagnosis and matching symptoms in others brings comfort and a sense of accomplishment, and I am not belittling that process, but I have never heard anyone shouting about finding a cure for this brand of PN or that. IMHO I am glad that I know that my root cause was diabetes. There is at least something that needs to be addressed before I could get better. Learn to use the search function here and stay off U-Tube,(contradictatory advise), Know what your b-12 number is. I am currently withdrawing from Nicotine in hopes of getting better oxygen to my regenerating nerves. That is it's own brand of torment. Good Luck, Ken in Texas.
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Old 05-21-2015, 01:11 PM #2
KnowNothingJon KnowNothingJon is offline
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I was in disbelief that mine was diabetic in nature, as it progresses despite mountain moving changes in my life and care.

I have times of despondency, Nancy Kerrigan tinged "Why me", though less make up. It is a roller coaster. If you have not actively tried to reduce your sugar & carb intake it is a nice place to start.

While I was pushing myself physically I found that pulling back a bit is the better idea. Between the numbness that is symptoms and the additional Lyrica numbing was allowing me to push myself too far.

I still have fatigue, but I like to believe it has lessened. I encourage you to maintain any positive changes you decide to make. It likely will take time. 18 months eating vegan and still progressing despite decent control, weight loss and improved blood numbers.

best of luck,
Jon
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Old 05-21-2015, 02:43 PM #3
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Hi Mary,

I am so sorry to hear about your struggles. It is perfectly normal and understandable to feel outraged, overwhelmed and robbed. What you are dealing with is undeniably difficult. My sister has diabetic PN which struck early, it is unfortunate you had to join those ranks. I don't have PN but after three foot operations, a nerve injury and CRPS I understand the beast that is nerve pain and the loss of daily function.

I found going to a therapist who specialized in chronic illness, pain and trauma to be immensely helpful. I too went through a very dark time and could not see my way out of it. The therapist helped me grieve my losses and move forward with skills to deal with pain and stress. She also utilized hypnosis and EMDR which made a huge difference for me and sort of went in sideways around the conscious speaking part of the brain. Depression and anxiety often accompany life changing illness. It is just as important to attend to your mental health as the physical and it will help you manage your condition and feel better. I found my counselor on the Psychology Today website. They have a list of therapists by city and I just looked for someone with the right clinical interests.

I second the Vit D recommendation. It is often low (even with sun) and so important for nerve health and chronic pain. You might also check out low dose naltrexone. It has shown some utility for diabetic neuropathy. http://ldnresearchtrust.org

Take care and be kind to yourself and your body. I am sending Healing Love and prayers, Littlepaw
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