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-   -   Diagnosed with SFN. (https://www.neurotalk.org/peripheral-neuropathy/221313-diagnosed-sfn.html)

thissux 06-09-2015 11:10 AM

Quote:

Originally Posted by mrsD (Post 1147249)
You need to continue with supporting your GI tract.

Clindamycin is especially hard on the beneficial organisms.

This is the NOW cleanse...I suggest you start it.

Taking some benfotiamine (or Thiamine daily) may help get rid of the aldehydes the Candida dumps into your system.
300mg a day of benfotiamine to start, or 300mg thiamine in divided doses for at least a month. You may see some improvement with that too.

If your infection is ongoing, it too can make you sick.

Thanks for the Info.

Once the symptoms started, I started researching and took all the recommended supplement and still do. The infection is long gone but Ill try the Candida Support.

Ragtop262 06-09-2015 02:29 PM

Quote:

Originally Posted by thissux (Post 1147111)
They havent found a cause. My feet constantly feel like something is moving in them. Been getting more twitches mainly in the legs, pulsing sensation through out the body, sometimes feel like water drops all over random places. Pin pricks on occasions, at times minor burning spots. They mostly come and go on different days. The feet thing has been constant since April.

Oh, that caused me to cringe - it sounds all too familiar to me..............

thissux 06-09-2015 02:37 PM

Quote:

Originally Posted by Ragtop262 (Post 1147287)
Oh, that caused me to cringe - it sounds all too familiar to me..............

How did your start and how long ago?

Ragtop262 06-09-2015 02:57 PM

Quote:

Originally Posted by thissux (Post 1147288)
How did your start and how long ago?

Mine started last July with twitching then cramping, in various areas but mostly the legs. Then a few months later the feet started burning, then some scattered mild burning and stabbing pains in other areas. No diagnosis yet, the Drs. don't seem like they believe my symptoms. They need to invent a device that would let a doctor "feel what your feeling" :rolleyes:

thissux 06-09-2015 03:25 PM

Quote:

Originally Posted by Ragtop262 (Post 1147292)
Mine started last July with twitching then cramping, in various areas but mostly the legs. Then a few months later the feet started burning, then some scattered mild burning and stabbing pains in other areas. No diagnosis yet, the Drs. don't seem like they believe my symptoms. They need to invent a device that would let a doctor "feel what your feeling" :rolleyes:

Thats weird. You cant ask for a biopsy?

madisongrrl 06-09-2015 07:20 PM

Quote:

Originally Posted by Ragtop262 (Post 1147292)
Then a few months later the feet started burning, then some scattered mild burning and stabbing pains in other areas. No diagnosis yet, the Drs. don't seem like they believe my symptoms. They need to invent a device that would let a doctor "feel what your feeling" :rolleyes:

Ugh. This is so typical of doctors. I'm so sorry. I really wish that our doctors could "spend" a day in our body. I think this would give many the empathy and attitude correction that is clearly needed.

thissux 06-09-2015 10:57 PM

I read about how a lot of people's PN starts with "tingling" in their toes. Can anyone elaborate on what kind of sensation that is?

Healthgirl 06-10-2015 06:48 AM

Quote:

Originally Posted by thissux (Post 1147383)
I read about how a lot of people's PN starts with "tingling" in their toes. Can anyone elaborate on what kind of sensation that is?

For me, before the pain, came the tingling. It feels like your body parts are not getting circulation, like they are falling asleep, going numb or do go numb. Or it can be more of a strong pins and needles feeling, or it can be little electrical zaps/shocks. That is usually how it started for most of us I think.
It depends if its length dependent or NLD as to where the symptoms are concentrated.

ellsac 06-10-2015 08:04 AM

My sfn started with sunburn feeling all over my entire body. If you scratched my skin, it would burn badly like I was sunburned.

This waxed and waned for a few months, and I started getting pin prick sensations everywhere-like someone was poking me with a needle.

The burning eventually stopped for the most part this past winter. Now I get some tingling, lots more pinprick sensations (like tiny bees stinging you), cramping, twitching, and compression pain. I have also lost some sensation on the backs of my calves and areas of my scalp...but even if I scratch other areas it'll still feel slightly weird-so I think I have probably lost some sensation all over.

My is obviously not length dependent, as it started all over my body. My feet and hands actually have all their sensation still I think.

thissux 06-10-2015 08:05 AM

Quote:

Originally Posted by Healthgirl (Post 1147411)
For me, before the pain, came the tingling. It feels like your body parts are not getting circulation, like they are falling asleep, going numb or do go numb. Or it can be more of a strong pins and needles feeling, or it can be little electrical zaps/shocks. That is usually how it started for most of us I think.
It depends if its length dependent or NLD as to where the symptoms are concentrated.

I see. Was it constant and how long after did the pain come? Thanks.


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