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Old 06-13-2015, 05:18 AM #7
glenntaj glenntaj is offline
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Join Date: Aug 2006
Location: Queens, NY
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glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default The possible good news--

--is that people with predominanatly small fiber neuropathy, which affects the sensory nerves that subsume the sensations of pain and temperature and many autonomic functions, do not typically progress to severe motor symptoms, as I did not, though my sensory symptoms, like many with small fiber problems, were severe. Mine involved a very acute onset, though (hours!) which is not typcial; people with acute onset neuropathies tend to have more of a chanced at recovery, though said recovery is often patchy and incomplete.

In short, people with small fiber neuropathy seldom progress to major motor symptoms, though the sensory symptoms, and sometimes the autonomic symptoms, can be quite debilitating without good management. The key is to keep monitoring, get symptoms relief however one can, and not to give up on finding doctors who will work towards diagnosis of cause; while many painful small-fiber neuropathies get labelled idiopathic there are probably fewer such cases than there should be, as only specialists really familiar with neuropathy look for more obscure etiologies, ranging from novel anti-nerve autoimmunities to odd toxicities to hereditary syndromes to borderline metabolice dysregulation.
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