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Old 06-15-2015, 04:18 AM #1
Neuroproblem Neuroproblem is offline
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Seemingly good read here on migraine disorders:

http://www.migrainedisorders.org/50-...of-migraine-2/

"Migraine Disorder is a new, descriptive term intended to include a currently disparate group of medical symptoms and conditions which might have a common pathophysiologic etiology. The unifying idea is that there are a number of complaints that are related to a malfunction, or hypersensitivity of the sensory and autonomic nervous system in these people. Furthermore, there appears to be a common genetic influence in this neuropathy. The link to migraine is strengthened in patients who have a history of one or more of the three most common symptoms of a migraineur: recurrent intense headaches, odd transient ocular symptoms (random white spots, zigzags, loss of vision, or blurring and motion intolerance (car sickness).he three most common symptoms of a migraineur: recurrent intense headaches, odd transient ocular symptoms (random white spots, zigzags, loss of vision, or blurring and motion intolerance (car sickness).he three most common symptoms of a migraineur: recurrent intense headaches, odd transient ocular symptoms (random white spots, zigzags, loss of vision, or blurring and motion intolerance (car sickness). In each of these conditions a person with this defective nervous system have a hypersensitive pain, visual or balance system. Another common theme among people with a migraine disorders is that hormonal fluctuations aggravate the defective nervous system."[/QUOTE]

i FORgot to mention, the neuro asked me about recurrent intense headaches, odd transient ocular symptoms (random white spots, zigzags, loss of vision, or blurring and motion intolerance (car sickness).[B]
I never experience any migraine symptoms before. The ENT appt, alone is enough to tell me that they dont think its neurolgical in order and have dismissed my neuropathy as nothing more than, making it up. I also doubt my allergies could cause my loss of smell like this.
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Old 06-15-2015, 04:33 AM #2
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I have had ocular migraines for many years. The first diagnosis was when I had a retinal angiogram... (I had a blind spot from a airplane trip)...the doctor said it was a ocular migraine.

I don't get headaches very often. I've only had one migraine and that was when I was pregnant over 30 yrs ago.

But I still get ocular migraines--with the visual auras. They tend to come if I use Zantac. So I avoid that drug. I don't get them from cimetidine (which is also an H2 blocker). So that is rather a mystery. Mine typically start as a spiral in the center of my vision, of a diamond shaped design, which grows wider and wider , and eventually leaves my central vision and disappears.

I've only had 4 or 5 of the auras during my whole lifetime though so I don't consider it a common event.

Anyone with visual snow or disturbances in circulation should be taking B12 and folate to support the blood vessels in the retina.
Getting a homocysteine blood test may show elevations which damage the tiny vessels in the retina and brain. Often blood vessel damage shows up first in the eye.
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Old 06-16-2015, 02:28 AM #3
Neuroproblem Neuroproblem is offline
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Quote:
Originally Posted by mrsD View Post
I have had ocular migraines for many years. The first diagnosis was when I had a retinal angiogram... (I had a blind spot from a airplane trip)...the doctor said it was a ocular migraine.

I don't get headaches very often. I've only had one migraine and that was when I was pregnant over 30 yrs ago.

But I still get ocular migraines--with the visual auras. They tend to come if I use Zantac. So I avoid that drug. I don't get them from cimetidine (which is also an H2 blocker). So that is rather a mystery. Mine typically start as a spiral in the center of my vision, of a diamond shaped design, which grows wider and wider , and eventually leaves my central vision and disappears.

I've only had 4 or 5 of the auras during my whole lifetime though so I don't consider it a common event.

Anyone with visual snow or disturbances in circulation should be taking B12 and folate to support the blood vessels in the retina.
Getting a homocysteine blood test may show elevations which damage the tiny vessels in the retina and brain. Often blood vessel damage shows up first in the eye.
I never had auras before, only if i stare a the bright screen too long, though it doesnt last long(i doubt these are migraines). My b12 were normal, according to the neuro, and of course i dont have the results, so im just taking thier word for it.
I already have a feeling that ENT appt in 2 months will be nothing more than, "there is nothing wrong". explaining my neuropathy to the ent will be kinda of useless, as they dont focus in that area. i Feel like i give them too much details about my symptoms, so they will dismiss what i think its wrong. Ever since they got hold of my kaiser records, i met increasing resistance from the docs. the neuro was more interested in my dysguesia(phantom bitter taste), and my vague stomach issue. I kept trying to explain the neuropathies, ive been having, but its a no go. She basically have the same opinion as my PCP, whom i saw a few months ago.

You would think the neuro would be curious if you said "sudden loss of smell and taste", she dint even bat an eye, and claims it is allergies. During the time i lost my smell, my nose were free of allergies because of the effects of the antihistamine, which also dried out my nose and reduced secretions.
ever since i left the neuro office, i had this nagging feeling that, what she said wasn't coinciding with my symptoms at all. I did forget to mention i had burning sensations(left collarbone area, and right hand), and extreme sensitivity to touch on my right arm.

i SHOuldve said the pins and needles and other flavours of the neuropathy, affected my whole hand, limbs, but at that time it only affected part of it. but now its all over my hand, and left side of the face. I also get tingling on the top of my head as well.
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