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-   -   Dr. Perlmutter on PN (https://www.neurotalk.org/peripheral-neuropathy/221592-dr-perlmutter-pn.html)

madisongrrl 07-02-2015 09:17 PM

One of the newer websites that independently examines supplements is labdoor. The company is growing and keeps adding to the items that they review. Labdoor ranks various supplements for quality and value. I appreciate that they test the product to see if it matches its label claim and also test for heavy metals.

https://labdoor.com/

Lara 07-03-2015 12:16 AM

Quote:

Originally Posted by caroline2 (Post 1152210)
Into my 2nd month on Inosine and Sphingolin that I'm taking for Nerve Damage from hip replacement. My right thigh is totally numb and had been burning and tingling for years and since on the above two I can say hardly anymore of the burn/tingle. So have to think these are helping with this damage.

Caroline, I'm having difficulty understanding why "totally numb" is a good thing. :confused:

Is this area numb since your hip surgery? Have you looked into Meralgia Paresthetica?

caroline2 07-03-2015 12:31 PM

Lara, I've never said totally numb is a good thing. This area is numb since hip replacement in 2010 and nerve damage....the two supps I'm taking now are reducing/eliminating the tingle/burn but certainly not the numbness. Nerves could be just plain dead. And I'm not willing to see more doctors etc. or even consider a surgery, etc....I'm living with it, and it's certainly not a good thing. A side effect from this surgery.

Patrick Winter 08-19-2015 02:02 PM

Quote:

Originally Posted by mrsD (Post 1152373)
I would like to comment on that Sphingolin again....

Here is why I don't like the thought of this supplement:

http://neurotalk.psychcentral.com/post1144611-3.html

The Sphingolin seems iffy to me and too risky. The bovine sources are often not identifiable as having Mad Cow. I believe a young cow was recently found with the disease. The Prions are difficult to find, and impossible to kill (instruments used on patients for open head surgeries, are thrown away... because they cannot be sterilized). I myself would never take any bovine or other animal organ derived supplement.

I am not aware of any testing of bovine nervous tissue, for prions. I don't believe they exist. They elude sterilization techniques that are used on surgical instruments, and so those used by neurosurgery are discarded and charged to the patients.
Every once in a while you can see news articles of nvCJD passed to patients by wrongful reuse of instruments. nvCJD is the human name for prion disease.

Would you say that a person taking Armour Thyroid should not be taking it? Understanding it is a FDA approved drug and not a supplement it is derived from pigs. Not being combative, just asking your thoughts. I know a lot of people with SFN would be willing to be lab rats at this point if there's even a small chance it will reverse the disease. People who have to take Armour Thyroid in many cases need it to simply survive because synthetic does not work for them.

icelander 08-19-2015 02:56 PM

Quote:

Originally Posted by Patrick Winter (Post 1164081)
Would you say that a person taking Armour Thyroid should not be taking it? Understanding it is a FDA approved drug and not a supplement it is derived from pigs. Not being combative, just asking your thoughts. I know a lot of people with SFN would be willing to be lab rats at this point if there's even a small chance it will reverse the disease. People who have to take Armour Thyroid in many cases need it to simply survive because synthetic does not work for them.

Why exactly should they not take both? I take both with no issue as far as I can tell.

mrsD 08-19-2015 03:51 PM

Quote:

Originally Posted by Patrick Winter (Post 1164081)
Would you say that a person taking Armour Thyroid should not be taking it? Understanding it is a FDA approved drug and not a supplement it is derived from pigs. Not being combative, just asking your thoughts. I know a lot of people with SFN would be willing to be lab rats at this point if there's even a small chance it will reverse the disease. People who have to take Armour Thyroid in many cases need it to simply survive because synthetic does not work for them.

If you do well on pig gland extracts, that is your choice.
In medicine not all things are totally "known". It is only after something happens that new ideas are considered. The future may hold new discoveries. In the world of insulin supplementation, both Beef and Pork insulin are history. That is just one example.

Here is one article about it:
http://www.endocrineweb.com/conditio...hypothyroidism

Thus, there is no 100% answer to your question at this time.

DejaVu 08-19-2015 05:08 PM

Quote:

Originally Posted by mrsD (Post 1164124)
If you do well on pig gland extracts, that is your choice.
In medicine not all things are totally "known". It is only after something happens that new ideas are considered. The future may hold new discoveries. In the world of insulin supplementation, both Beef and Pork insulin are history. That is just one example.

Here is one article about it:
http://www.endocrineweb.com/conditio...hypothyroidism

Thus, there is no 100% answer to your question at this time.

mrsD,
Thanks for the article.
:hug:
DejaVu

caroline2 09-09-2015 12:10 AM

I could write my own book on thyroid issues that I tried to get supported for about 10 yrs and because of the lab numbers, doctors told me I was fine. Not so, after 10 yrs of anti depressant drugs that the doctors gave me instead of thyroid I was able to throw those drugs away once my then D.O. called in for Armour in 2002 and the depression lifted in a few days....That was in 2002.

I tried so many different types of support and desiccated worked best for me.

In recent months the Armour product company was sold and prices for Armour went out of sight for me. So I was able to find NP Thyroid from the Stop The Thyroid Madness group and love this product, it's the generic for armour.

I have no issues with pig thyroid, only positive results. Synthetics made me so fatigued thinking back when endos wanted me to take syn product.

I've done well with Sphingolin for nerve damage from hip replacement surgery.

pinkynose 09-09-2015 08:05 AM

Quote:

Originally Posted by caroline2 (Post 1169739)
I could write my own book on thyroid issues that I tried to get supported for about 10 yrs and because of the lab numbers, doctors told me I was fine. Not so, after 10 yrs of anti depressant drugs that the doctors gave me instead of thyroid I was able to throw those drugs away once my then D.O. called in for Armour in 2002 and the depression lifted in a few days....That was in 2002.

I tried so many different types of support and desiccated worked best for me.

In recent months the Armour product company was sold and prices for Armour went out of sight for me. So I was able to find NP Thyroid from the Stop The Thyroid Madness group and love this product, it's the generic for armour.

I have no issues with pig thyroid, only positive results. Synthetics made me so fatigued thinking back when endos wanted me to take syn product.

I've done well with Sphingolin for nerve damage from hip replacement surgery.

So glad you were able to get the product from that group. A good friend of mine who passed a few years was well known in that community for his research.

pinkynose 09-09-2015 08:31 AM

I just read the article from pr newswire that was referenced which said, "Pharmaca may re-stock dietary supplements with bovine source material once we are assured the source is from a non-BSE infected country such as New Zealand," said Don Summerfield, VP of integrative medicine."

Sphingolin by Ecological Formulas uses cows from New Zealand according to my research.

When I was pregnant I was very anemic and the iron that was available was not working. I switched to a product by Standard Process Labs and I was no longer anemic(or constipated) as my body was able to absorb the iron. It contained bovine everything. Of course i did not know the risks then and I don't think I would have taken the chance with my son, but now it's just me.


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