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#11 | |||
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#12 | |||
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I should add that I also get a rash on the sides of my face and neck that appears almost every single day but is NOT from the sun. This started a few months before my major symptom onset and has been occurring ever since. Perhaps others get this as well?
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#13 | ||
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I have had a fan on me at work every day for years, even through our arctic winter this year. I have always run warm, but now it is amplified.
If I were in Spinal Tap I'd claim it goes to 11.
__________________
I urge you to please notice when you are happy, and exclaim or murmur or think at some point, "If this isn't nice, I don't know what is." - Kurt Vonnegut "It's an art to live with pain, mix the light into grey"- Eddie Vedder Just because I cannot see it, doesn't mean I can't believe it! - Jack Skellington |
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#14 | ||
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Mostly my burning symptoms have turned into a hot tight disturbing feeling. I cannot take a hot bath or it sets it off. I put my air conditioner on in the bedroom at 66 and it helps tremendously. |
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"Thanks for this!" says: | canagirl (06-18-2015) |
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#15 | |||
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Wisest Elder Ever
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Do you only get this on exposed skin (exposed to UV?)
Anywhere else besides the thighs?
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#16 | ||
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It seems that I need to be in temps of steady 65 (with blanket or sweater) and up to 75 degrees to be ok. I never had a problem with cold in my life! I am trying not to be terrified of next winter and to take this a day at a time. Other things have improved, so I don't know where I am with this. Worrying about the fall/winter will only make me insane. |
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"Thanks for this!" says: | canagirl (06-18-2015) |
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