It's so bizarre how different our problems are. I went to the dentist today and got a hair cut. Both places had their A/C going, and the one thermostat I saw was reporting a temp of 72.

I was miserable. I had near non-stop tingles/rushes and couldn't into my hot car fast enough.

Oh yes, totally bizarre. I will say that when this awful disease came full on last year, any cool breeze bothered me too. It was like a cold, acid hypersensitivity that would wash over all my skin when the air conditioner would blow on me at work. I fully suspect that the reason I don't get that feeling much anymore is due to the 2-fold increase in gabapentin dosage. However, during those cold winter weeks we had in Wisconsin (15F and less), my feet would burn if I got in the car to drive somewhere.

Winter was hellish for me too. The cold hurt so bad that every part of me was shooting pains down to my bones. Oh God, it was so bad. I can't actually be in temperatures of below 60 or my autonomic stuff goes haywire. My breathing becomes extremely shallow and so many parts go numb. I have had to leave my sons spring baseball games to get in the car because I felt like I was going to die. Fast shallow panting breaths, stiffening of muscles, shaking- can barely even talk. As soon as I got in the car and got to a normal temp, it would calm down.

It seems that I need to be in temps of steady 65 (with blanket or sweater) and up to 75 degrees to be ok.
I never had a problem with cold in my life!

I am trying not to be terrified of next winter and to take this a day at a time. Other things have improved, so I don't know where I am with this. Worrying about the fall/winter will only make me insane.

I should add that I also get a rash on the sides of my face and neck that appears almost every single day but is NOT from the sun. This started a few months before my major symptom onset and has been occurring ever since. Perhaps others get this as well?

I have had a fan on me at work every day for years, even through our arctic winter this year. I have always run warm, but now it is amplified.

If I were in Spinal Tap I'd claim it goes to 11.