Originally Posted by Lukesmom

Thank you for your reply! I went to visit my uncle in Florida in March. His health is failing and he wanted to see me. I haven't seen him in 2 years. When I got there I was shocked at his physical appearance. He is a tall man and was always big but not fat. He now has severe scoliosis, his hands are sort of contracted in flexion, his feet seem flat and he walks with a high step gait. He has 2 bad hips that have been replaced and a history of lumbar spine surgeries. He tells me that he has had neuropathy for years. So I naturally wonder if he has CMT? I have no other family members that have any signs of CMT, although that side of my family is mostly gone now.

My symptoms began in my big toes and progressed up my feet, legs and now hands and arms. This all began after a epidural steroid injection. I did have an EMG study which also showed distal leg large nerves also involved.

The hand problems are fairly new and so I thought I would ask if others have any ideas. I've been through so much since this began so just like other forum members I'm trying to solve the puzzle, and trying to live with the pain and limitations that is now my life!