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Old 07-03-2015, 11:37 PM #1
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I have idiopathic SFN and am cold intolerant. I think there are only a couple of other people on the forum who share that trait with me. It seems to be more common to be heat intolerant.
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Old 07-04-2015, 12:23 AM #2
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WWhen my symptoms went ape dung in March and I was sprawled on the bed my wife tried to move a twisted cover and grabbed my ankle. I yelled out. It felt like Iceman from the X-Men was grabbing my ankle. I don't have too much alodynia (Sp) but when I do it appears it is on the rocks, which is odd as what feels like a lifetime ago beer was my game.

So it goes.

Jon
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Old 07-04-2015, 07:31 AM #3
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I am also much worse in the winter, cold intolerant, as well as with barometric pressure drops. I have hereditary neuropathy (CMT). It was horrible years ago when our boys had night baseball games in fall ball my legs and bottom would get so cold I had to stay in a hot shower for 15 minutes or they would be like ice for hours.
I do not go out if it is very cold now because I simply can't warm up afterwards, and the pain is severe. Mixing cold ground beef for meatballs makes my hands hurt and I have to keep running them under hot water to get through it.
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Old 07-04-2015, 09:14 AM #4
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I hate the cold but it is better than hot. Heat just wipes me out. However, where I live we can be -30 below like nothing. That's a bit much and not so bad at -10 below. But in the winter the ice is worse due to being afraid of slipping and falling. Can fall easy enough otherwise.

I can tell when the weather is changing and there will be a thunder storm. My wrists crack it seems. You can hear them. Never fails. It's the barometric pressure thing.

I still love autumn the best as it is usually sweatshirt weather and the leaves on the trees are so pretty. But, alas, winter is coming. And then summer.
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Old 07-04-2015, 12:58 PM #5
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I have both heat and cold intolerance. I can't handle the cold and my feet tend to burn a lot in winter. In the summer, everything burns and feels uncomfortable. My face will turn red if I'm exposed to warm temps. It looks as if I just ran a marathon!
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Old 07-04-2015, 02:48 PM #6
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Thanks everyone - your answers help confirm my guess that PN could be seasonally affected. The variety and range of changes that you all experience due to weather is enlightening. Still learning something new about this aggravating condition every day.

I agree barometric pressure (and humidity) can definitely affect how the body performs - influencing BP and water volumes. I would also guess that maybe in stormy conditions there is extra electrical charge in the air which could have an 'excitability' effect on nerves?

KnowNothingJon - I experienced Florida weather before I had PN - even then the heat & humidity was difficult to deal with - can't imagine trying to cope with PN in that climate. Kudos to you for sticking it out.

I guess this means I need to get my A into G and get stuff done while I can manage before summer arrives.
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Old 07-04-2015, 03:38 PM #7
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My brothers, sister, our progeny and my parents planned to go. I almost pulled myself out a few times, though the thought of letting people down and the extra strain that would leave on my wife, I came.

It has been rough, interesting, arduous, but I have found my smiles. I am working on an essay of sorts on my experience, as I used a wheelchair to get around after the first day was decimated by my walking for three hours...

Fascinating stuff, people's behavior.
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Old 09-29-2015, 06:15 PM #8
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Quote:
Originally Posted by janieg View Post
I have idiopathic SFN and am cold intolerant. I think there are only a couple of other people on the forum who share that trait with me. It seems to be more common to be heat intolerant.
My SFN also very cold intolerant. I feel some better after sweating for some reason. Interesting, when I was on hormones for menopause, my "freeze flashes", as I called intense coldness, were worse. And when I quit hormones they completely went away. Just an observation.
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