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Old 07-08-2015, 05:01 PM #31
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I sure hope you are using methylB12 now after a decade of acid blocking drugs!
Indeed I am, just taking 1000 IU a day sublingual.
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Old 07-09-2015, 10:15 AM #32
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Yes, I have constant buzzing, vibrating, and electricity feeling( every minute of every day). It never goes away and it's in every part of my body. I'm trying to keep positive I have had others tell me that eventually these symptoms usually settle down.

When this first hit me I was extremely anxious and depressed. Once I got my sfn diagnosis I went through the roof. In the weeks following I feel like i have calmed down a bit ( still anxious and depressed but I feel the anxiety decreasing a bit each day). It's still new for me but I think being diagnosed is helping me move on ( slowly). It proved I'm not crazy and causing this myself ( Drs said I was, stressed, snd way too anxious and that I was causing my body to do this )

Hang on, I believe we will both find a way to cope and move on. As to having a family... I'm young, 31 and I have a 19 month old. I love him dearly but it's hard ( sfn hit me after his birth). I always wanted another more children but I wont be having anymore. I feel guilty about all the things I'm not doing with my son and I couldn't have more kids to add to the mix. I feel like my mental state will never return to my " normal" in order to have more kids.

However, physically ( if I came off the meds) there is nothing stopping me from having more children.
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Old 07-09-2015, 12:52 PM #33
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Ok thanks. So does anyone experience same symptoms as i? Especially this buzzing or vibrating... Like the skin.is irritated as sth comes across skin
Yes, I also have buzzing and vibrating. I get rain drops, pin pricks, stabs, and all kinds of crazy stuff.
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Old 07-09-2015, 05:26 PM #34
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Originally Posted by canagirl View Post
Yes, I have constant buzzing, vibrating, and electricity feeling( every minute of every day). It never goes away and it's in every part of my body. I'm trying to keep positive I have had others tell me that eventually these symptoms usually settle down.

When this first hit me I was extremely anxious and depressed. Once I got my sfn diagnosis I went through the roof. In the weeks following I feel like i have calmed down a bit ( still anxious and depressed but I feel the anxiety decreasing a bit each day). It's still new for me but I think being diagnosed is helping me move on ( slowly). It proved I'm not crazy and causing this myself ( Drs said I was, stressed, snd way too anxious and that I was causing my body to do this )

Hang on, I believe we will both find a way to cope and move on. As to having a family... I'm young, 31 and I have a 19 month old. I love him dearly but it's hard ( sfn hit me after his birth). I always wanted another more children but I wont be having anymore. I feel guilty about all the things I'm not doing with my son and I couldn't have more kids to add to the mix. I feel like my mental state will never return to my " normal" in order to have more kids.

However, physically ( if I came off the meds) there is nothing stopping me from having more children.
Hi canagirl,

I believe this Post is a turning point! While you still have your serious issues you seem more lucid, less frantic and panicked. This is wonderful for you for the future. It may not make you well, but a peaceful mind can clip a point or two off your pain level - and you just feel happier and more able to cope with life.

You may not be able to interact fully with your Little One due to your condition, but you WILL find ways to fully enjoy every aspect of Motherhood.

Dave.
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You and I are yesterday's answers,
The earth of the past come to flesh,
Eroded by Time's rivers
To the shapes we now possess.

The Sage - Emerson, Lake & Palmer.
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Old 07-10-2015, 01:14 AM #35
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Thanks englishdave,

I definitely still have my frantic times, but I think they are coming less often ( not hard to do since they were pretty much non stop!).
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Old 07-10-2015, 06:02 AM #36
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Thanks englishdave,

I definitely still have my frantic times, but I think they are coming less often ( not hard to do since they were pretty much non stop!).
I really hope that things continue to improve for you. Considering what you have posted here that I have read you deserve every success.
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Old 07-11-2015, 09:59 AM #37
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Thanks guys,i feel better reading these posts. But i am a little.bit scared because.now for.three days.i notice this.vibrating feeling mostly in my right leg?? Especially around ancle. Didnyou eyperience this.vibrating also.on only one.part of body? Does this.change? I am.scared of stroke ?? This.vibrating.in this.right leg.began.the day.after.i.had.mri.of the brain...
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Old 07-11-2015, 10:06 AM #38
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With me, sometimes both legs vibrate, sometimes just one, and sometimes neither. I have near-constant tingling in both feet, but the unsettling vibrating comes and goes. It was really bad last month and was the strongest it's ever been, and this month it's not as bad.

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Thanks guys,i feel better reading these posts. But i am a little.bit scared because.now for.three days.i notice this.vibrating feeling mostly in my right leg?? Especially around ancle. Didnyou eyperience this.vibrating also.on only one.part of body? Does this.change? I am.scared of stroke ?? This.vibrating.in this.right leg.began.the day.after.i.had.mri.of the brain...
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Old 07-11-2015, 10:13 AM #39
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Ok so.now. i have it for three days.mostly in my right leg so this is not related.to stroke?
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Old 07-11-2015, 10:28 AM #40
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I'm not a doctor and can't diagnose you, but what I can say is that the only symptom you cited in your first post that I can't relate to is the shortness of breath. I've never had that, but I have experienced a fast heart rate which I believe is just tied to the level of discomfort I have. And initially I experienced that much for often I think because of the anxiety I felt from not knowing what was wrong with me.

Now I'm more used to all the strangeness, and I don't get as upset by it. I've not yet accepted my fate and continue to look for a cause, but I'm not frantic about it any longer. I think that's the single biggest thing that has caused my symptoms to lessen over the past 20 months. As soon as I get stressed by anything right now, my symptoms get ten times worse nearly immediately.

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Ok so.now. i have it for three days.mostly in my right leg so this is not related.to stroke?
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