Yes when I was very sick I lost 10lbs that I didn't need to lose. I gained most of it back. I had to drink protein shakes with huge amounts of peanut butter, eat lots eggs, and a huge amount of calories just to stop from losing more weight.

From your post you say that you lost 10 lbs. when you were very sick. Nothing to do with neuropathy. That's the way I'm reading your post.

I was fairly muscled and lean at about 122 lbs. Then all my symptoms came on very quickly and I dropped down to under 110 lbs. I barely moved or ate during this time. I laid in the recliner for a few months straight. After almost a year and a half I'm back at 122 lbs; however, my body composition is not the same because I'm not lifting weight anymore .

I had weight loss 30 pounds prior to my neuropathy due to esophageal tear and abdominal surgery.

It seems like the GI system can be connected to neuropathy.

It has been a year and I am still down 20 pounds.

Went from 150, to 120, to now 130.

I feel best at about 135-140, though that might be a little too much. I am padding since I was at 120, I felt so weak.

Still feel weak, but don't feel like I am dying.

HTH.

I'm 6'2" so I am closing in on "ideal weight". My neurologist feels the closest I get to that and maintain, the more likely I halt damage and perhaps even see some retreat?

That feels too bold to hope for, but on the table. I appear to be in a vocal minority on the boards from the diabetes lense. But it does appear flares for idiopathic often run a sugar/carb run.

I feel better with less on my stomach. My "meals" tend to be small. My eating heavy bow would be snack level at times before.

I eat often when I'm not hungry because I know I need to hit certain levels daily. I hope to shrink those occurances. Being in discomfort only adds to my lack of hunger. Feeding the beast in my case is just about the worst thing I could do.

I hope you seek some medical opinions on what to do Icelander, but stick aroubd here, eh? I learn all kinds of stuff that informs on my life in many ways.

Be well, keep your head up.

Jon

Kitt, the reason I am sick- is because of a neuropathic illness. I am diagnosed with idiopathic polyneuropathy and autonomic dysfunction.
It crept slowly for a year with mostly autonomic symptoms, weakness, and numb parts and then the nerve pain began. By "sick", I am talking about the acute phase when it went full blown all over my body and I was debilitated for 4 months. During this time I had such spasms in my muscles that I had difficulty swallowing. What I did swallow would come right out the other end. I was nauseated, dizzy, and in excruciating pain all the time.

Thank you for the information Healthgirl. It is appreciated.