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Old 06-21-2007, 10:44 PM #1
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Roxie2007 Roxie2007 is offline
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Location: Houston, TX. Orig.from Lincoln, NE.
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Roxie2007 Roxie2007 is offline
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Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
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HI Cathie,
I am going to ask my Rheumatologist about what I need to do now to get well. I'm SO tired of feeling like this.
I'm sending this article to all of my friends who's had this surgery. They need to know that they need to increase their vitamins.....not just take the amounts the dr.s suggest....like I did!
It's not an easy surgery to recoup from but now finding out all these other issues that come with it......is just overwhelming! The worst part is I didn't have this surgery to lose weight! I did it to lessen the acid that was irritating my Barrett's Esophagus!.....and it didn't even do that!
I hope you are having a good evening........Roxie
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 06-21-2007, 11:54 PM #2
daniella daniella is offline
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daniella daniella is offline
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Hi. I'm currently on the hunt for better meds and I wonder if Lyrica is not for you or maybe you need a combo? I'm really sorry again and you know I was thinking its such a hard call on issues like this or other problems where there are risks to trying to get better. Its switching one issue for another. I had recommend a book that I think may be helpful for you call nutrients for neuropathy . My friend I was inpatient with was thinking too of this surgery but feared many of the side effects and I could understand why and the more I hear too. On a side note are you able to eat actual food properly now? I don't know with the injections but I know that its very important to also fuel with food so that nutrients can absorb from supplments. I may be wrong but what I was told. Stay strong and I give you a lot of credit for working hard too.
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Old 06-22-2007, 12:15 AM #3
Brian Brian is offline
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Brian Brian is offline
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Hi Roxie, this is a rotten thing to happen as a lot of us seem to put to much trust in the medical field but you can turn this right around in time in your favour.
I don't know much about injectable vitamins and minerals for nerve health but i do have shots of b12 [ Hydroxocobalamin ] that was ordered from my neuro and i continue to have them and what a differance it has made.
The cause of my PN was low B12 & Prediabetes, i had to fully change my eating and drinking habits and exercise, i couldn't walk for to long on a pavement because of my burning feet would kill me, so i went to the local swimming pool and just walked up and down the unused lane of the pool [non weight bearing ] i used to get there when they opened at 6.am, best time because one, its wasn't full of normal swimmers, two there were surprisingly quite a few others doing the same for all sorts of med problems and it helps talking to others as well.
I changed my diet to a healthy high fibre diet, stayed away from sugary carbs and stopped drinking alcohol [beer] as its full of sugar and the alcohol is a well known nerve irritant as well.
Now, i am fast fowarding this to these days, 4 years later.
No burning 98% of the time, no pain, prediabetes is gone, complete numb spots on my feet have regained feeling, i can wear leather shoes and boots no problem, everywere my neuro tests he gets a positive reactions, i feel alive again all day long and feel full of life, a complete opposite to what i was originally, when i struggled to make it to lunch time, so so tired all the time.
So if i can do this so can you, keep in mind whilst healing, flaring of symptoms is common but our bodies have got a remarkable ability to repair itself.
good luck
Brian
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