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progression of sensory polyneuropathy - vibrating/buzzing

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Old 07-21-2015, 03:49 AM #1
barbie86 barbie86 is offline
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Default progression of sensory polyneuropathy - vibrating/buzzing
Hello, is your progression fast or slow?
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Old 07-21-2015, 08:08 AM #2
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Hello, is your progression fast or slow?
Mine was extremely fast, I went from being fine to twitching everywhere Ina week. Within 4 months I had the burning , vibrating, electrical feeling etc etc
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Old 07-21-2015, 10:02 AM #3
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Mine crept up slowly. I started noticing symptoms- almost 2 years ago and then it got very bad last summer. I seem to be stabilizing now to at least a more manageable situation.
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Old 07-21-2015, 01:22 PM #4
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Mhm and the whole body or just some parts=
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Old 07-21-2015, 01:31 PM #5
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Mine was pretty sudden. Everything at the same time - feet, hands, hot/cold spots, dizziness etc. It has waxed and waned depending on the week but I haven't gotten better or worse since it started. Would say the vibrating is much less than before but the pain and fasciculations are more frequent.
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Old 07-21-2015, 04:51 PM #6
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Mine is sensorimotor axonal polyneuropathy.
The "sensations" had started in limbs, approx. 33 years ago.
They were very mild then.

It's gotten progressively worse over these 33 years... slowly.

I did a lot to try to intervene and sensory nerve regrowth had been noted on skin punch biopsies. However, at this point, the sensory nerve die-off is greater than any regrowth.

It's likely the rate of progression is multi-factorial in nature.
I am sure there are individual differences.

Warmly,
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Old 07-21-2015, 08:49 PM #7
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Originally Posted by barbie86 View Post
Hello, is your progression fast or slow?
It depends on the cause, or disease. I think everyone has a sudden onset of symptoms, but some stabilizes, progresses slowly, and proceeds very rapidly. My was sudden onset, and progressed rapidly, but it stabalizes, but i most likely was left with permanent "partial" loss of sensation.
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Old 07-21-2015, 10:15 PM #8
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Mine started about 7 years ago in my feet. Within a few weeks it was everywhere but the left side of my face.
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Old 07-22-2015, 09:44 AM #9
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Mhm, thanks. In my case it was also a rapid onset. Do you get also tingling or numbness in your tongue occasionely? On one side of the tongue
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Old 07-22-2015, 09:53 AM #10
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Keep in mind that many women may experience remissions of autoimmune issues during pregnancy. This is because cortisol levels go way up to protect the fetus.

This is another reason autoimmune issues remit during pregnancy...new research:
http://www.kellogg.umich.edu/news/20100615_PETTY.html

However, after delivery, the autoimmune issues may return with a vengeance. It doesn't happen for everyone, but it is fairly common.

It is also very important to try and keep anxiety down as much as possible as high levels of adrenalin negative impact the fetus.
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