Hello friends,

My symptoms have now moved completely into my fingers, hands and arms in one weekend. Tingling, stabbing, buzzing, a "drawing" sensation thru my thumbs and fingertip pain with a "blob" of pressure in my upper forearm, just before the elbow - both arms.

My feet, calves and leg symptoms continue with all the usual, but patchy symptoms. This patchiness is what gives the 20+ docs I've seen the reason to say they can't officially diagnose me. But I know what I feel. And the circulation in my feet ankles is compromised. When I walk or move, it's fine.

My health: no RX, no disorders/diseases or CMT (I was checked for that two years ago and it was negative.) Last time I took antibiotics was almost 10 years ago. Could it show up eight years later?

Symptoms began two years ago only in my left and right ankles. Now, my entire body. I had a dental filling removed last month and the left side of my face is now affected.

When this first started, the neurologist specialty clinic I went to first said I had CIDP and started me on IVIG which I had six infusions. The MS specialist took over and said I did not have CIDP but MS. Then had another brain/ cspine MRI, LP, etc to have those come up normal. He said "you've had more testing than any other patient in this clinic and you have no neurological illness. When I asked if I had demylinating - he said" NO. You have sensitive and irritated nerves."

Went to other docs and heard virus, then no, it is not a virus because I would not get worse years after a virus.

I've been on the supplement regime for over a year with no improvement. Recently, I adjusted it based on recommendations from Mrs. D.

It feels like a runaway train. I have everything working in my favor to at least halt the progression, but on it goes. If I have twitching, about two days later, that area is numb. I'm twitching all over and now my thumbs. I get goosebumps, energy surges down the back of my legs frequently, but less than I used to. My future looks very bleak.

Everyday I wake up and believe in my body and ability to heal. I'm reaching the point of giving up. What is making my nerves fall apart so quickly?

PS - when this first hit me, I had severe aching in my arms like I lifted weights for days. The day of my worst symptoms, the nerve conduction was run and all was normal. That neurologist said I had demyelinating neuropathy. That is why every other doc who looks at me and my test results shakes their head and says I don't have it.