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Not CMT - why am I getting so bad so fast?

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Old 08-01-2015, 03:59 PM #1
Eskiemom Eskiemom is offline
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Eskiemom Eskiemom is offline
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Default Not CMT - why am I getting so bad so fast?
There are a few of us who seem to be on the same path.....

I am getting worse by the day with my symptoms about 50% worse than two weeks ago.

If it's not hereditary, than what could cause this type of progression?

And I'm curious if I pass all the clinical tests - vibration, reflex, pinprick, standing on my head (ha, ha) etc., maybe it's not neuropathy?
Last edited by Eskiemom; 08-01-2015 at 04:27 PM.
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Old 08-01-2015, 04:30 PM #2
canagirl canagirl is offline
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Quote:
Originally Posted by Eskiemom View Post
There are a few of us who seem to be on the same path.....

I am getting worse by the day with my symptoms about 50% worse than two weeks ago.

If it's not hereditary, than what could cause this type of progression?

And I'm curious if I pass all the clinical tests - vibration, reflex, pinprick, standing on my head (ha, ha) etc., maybe it's not neuropathy?
I passed all the tests too...only skin biopsy showed neuropathy.
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Old 08-01-2015, 04:32 PM #3
canagirl canagirl is offline
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I am progressing rapidly as well. However, this last week hasn't been as bad. The last two days haven't been as bad as normal so that's something Positive. Hopefully, you will have have "better" days too.
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