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Old 08-04-2015, 10:07 AM #1
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Originally Posted by baba222 View Post
Hi,

Could anyone tell me their idea of the hierarchy of damage related to pain for SFN nerve damage?

Is it in descending order:

Complete loss of sensation
Burning pain
Bee stings
Pins and Needles
Tingling
Normal sensation

What are your experiences and ideas?

TIA
My experience has been similar to yours and in the same order except I do not have complete loss of sensation. I also have twitching or pulling of the muscles on my feet or legs at night while I try to sleep. This came right from the beginning and has continued. The other almost constant symptom I have now is burning pain in feet, legs or back. The other symptoms you mentioned I have sometimes but not constant.
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Old 08-04-2015, 10:38 AM #2
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I had something interesting happen last week that was a first.

I developed this odd sensation in a muscle on the front, outside of my lower left leg. It was a constant strong vibration/buzzing, but very localized just to that area. Had never had anything like it, and felt fortunate there was no associated pain.

Then after three days, the pain came, but thankfully was very intermittent. It started higher up in that leg, went through that buzzing area, and ended on the outside of my foot. It was an extremely sharp shooting pain that stopped me in my tracks, and a couple times almost made my leg buckle.

Then it stopped after a few hours. And when it stopped, the buzzing in that localized area was gone.

Has anyone experienced anything like this?

Last edited by janieg; 08-04-2015 at 02:52 PM.
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Old 08-04-2015, 10:47 AM #3
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My experience with my hypothyroidism (which was mostly a compressive type PN):

I had pain in the feet to begin with. And numbness and tingling in the hands. Eventually the feet stopped hurting..and became numb. The hands would go numb on the steering wheel of the car or when I wore gloves, and at night sleeping.

The hands were the worst, and during my pregnancy were totally disabled and I had horrendous pain at night. Once I delivered most of the hand issues resolved to about 10% and would flare some with stressful activities. I continued to wear my braces at night for years after. I still do at times of flares.

My feet finally woke up when I was diagnosed with a goiter and low thyroid. I had tingling and pins and needles for many months and finally they went away after a year or so.
So I equate numbness with severe nerve compression at least for myself. Numbness that does not vary with the daytime activities, is worse than occasional numbness. I can get numbness in my hands when I have low blood sugars today. But it goes away when I eat something.
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Old 08-05-2015, 09:37 AM #4
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Yes mine has been in the about the same order except I had major twitching first. I still have excessive twutching but it has lessened a tiny bit. The burning and stinging is ALL over my body at the same time. It doesn't come and go it's there. But I haven't lost sensation, I still feel everything. I guess this list scares me. Next step is loss of sensation? Since my burning/stinging is everywhere all at once does that mean I will have zero feeling everywhere?
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Old 08-06-2015, 10:35 PM #5
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Quote:
Originally Posted by pinkynose View Post
My experience has been similar to yours and in the same order except I do not have complete loss of sensation. I also have twitching or pulling of the muscles on my feet or legs at night while I try to sleep. This came right from the beginning and has continued. The other almost constant symptom I have now is burning pain in feet, legs or back. The other symptoms you mentioned I have sometimes but not constant.
I am sorry that I was not clear. I do not have complete loss of sensation.

I was trying to get some answers regarding levels of damage. I still have LOTS of pain.

I have no normal sensation anywhere now. It is painful to wear clothes and be touched.

It is a nightmare that I could have never imagined.

Thank you for responding.
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