I can add a comment on this problem...

I am EXTREMELY sensitive to being cold since developing neuropathy. My symptoms become more pronounced and more widespread. I get these "rushes" in localized areas of my body that are similar to that "chill up and down your spine" feeling.

I do everything I can to stay warm, and my symptoms are better in the warm months than cold. I live in a very hot area of the country now that it's summer, and I ridiculously carry sweaters or jackets anywhere where I might have to spend a prolonged amount of time in cold air conditioning. I learned that after doing everything I could to not shiver in the dentist's chair.

I get very cold too but I also think I may actually have bad circulation because my fingers will turn purple sometimes in the office. Have you ever had problems triggered by drinking a cold drink? (when i am in the office and cold already and drink from the water coolers - which are chilled- this often causes the stinging pain). I also sometimes have problems with the heat - except this causes a sensation of water running down my legs. I just never know what things are symptoms because they are such a mish mash of reactions.

No, can't say I've had that problem. But pronounced chills I get when I'm cold I also get when I get "the chills" from hearing something exciting or scary. Whatever the response mechanism to that is what's triggered by being cold.

Now this is interesting because if I am surprised or caught off guard I sometimes have the same stinging pain that I get when I am cold except sometimes it covers more of the body. I had never heard anyone else to have this!

Also I am wondering if anyone can think of a reason that the burning in my feet is only in the morning (when most people say burning is worse in the evenings)?

mine burn in the morning and then sometimes at night . what meds are everyone using . I have tried so many

it seems your PN is brought on by cold, almost everyones pn, is usually constant throughout the day, usually gets worst at night because of low temperature or high temperature.

I tried a few a couple years ago but the side effects weren't worth it and because my pain doesn't seem to be constant I decided to stop trying at the time to find something that worked (I had tried gabapentin and cymbalta). Gabapentin made me dizzy and "fuzzy" all the time and cymbalta made me almost like a zombie to the world and lose all appetite.

I have similar pain. I think my pain involves my Sciatic Nerve....Doctors couldn't say for sure. I've been taking Gabapentin aka Nerontin (600 mg 3 times a day). and it has made a positive change. My pain often starts because I sit too long with pressure on the back of my thigh. When that happens I take the Gabapentin then walk around until the numbness/tingling in my foot is gone.

Janieg, do you have relief with the lipoic acid, flaxseed, etc. diet? Or just no progression?