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Old 08-08-2015, 06:06 AM #21
bluesfan bluesfan is offline
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It's not just that there are so many different medical opinions concerning neuropathy that are confusing - there are more than 100 different types of neuropathy and just as many different causes. That's why trying to get a definitive diagnosis can be difficult. Symptoms, prognosis and treatments can all vary depending on type and/or cause. I think this may also be part of the reason why there is limited funding for research in spite of the prevalence of the condition.

Sorry for changing tack there Phil. MrsD is right about the lab ranges for B12 being too low. I came across an Aust. Govt. paper that recommended 200pmol/L as a minimum safe level. (the 400 pg/ml that MrsD recommends converts to 295 pmol/L).

Hope your PET scan uncovers something.
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Old 08-08-2015, 04:26 PM #22
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I'm not sure,I will go back through the test results and have a look. Yes it's confusing and frustrating. Thanks for your help.
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Old 08-08-2015, 04:29 PM #23
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Thanks blues fan yes hanging out for the scan.
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Old 08-08-2015, 04:35 PM #24
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[QUOTE=kiwi33;1160912]Phil, if you want to you could post the details of the lab reports about autoimmunity here (or by PM if you would prefer).

is this the test?


MICROBIAL SEROLOGY

RRV IgG (EIA): Negative
RRV IgM (EIA): Negative

No serological evidence of exposure.
Please repeat serology in approximately 14 days.
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Old 08-08-2015, 06:30 PM #25
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Phil, RRV probably stands for Ross River Virus. People who are infected with RRV often develop polyarthritis - this is a form of arthritis which involves five or more joints simultaneously.

If you are infected with RRV there would be antibodies (IgM, produced shortly after infection and IgG, produced later) in your blood specific for it.

Those tests came back negative (EIA = Enzyme ImmunoAssay is the name of the procedure that was used).

I am impressed that your doctors checked that possibility out.
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Old 08-08-2015, 08:46 PM #26
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Yes he is the good old fashion doc. He sits down and talks to you. Great bloke.
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Old 08-08-2015, 11:13 PM #27
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I'm glad you have a good doctor, Phil. I'm glad you don't have Ross River Fever, but I hope you get some answers soon.

- regarding testing for RRV.

I'm in SE Qld and Ross River Fever is an epidemic. We had late cyclones and extreme heat this year. According to Queensland Health there were almost 3000 cases of Ross River Fever reported in inner city Brisbane alone in the 3 months from January to March this year.

I don't live there, but I do live in a bit of a hot spot myself surrounded by a fresh water lake. It's unbelievably common now in the south of the State whereas once it was mostly found north of the Tropic of Capricorn and in areas around Townsville, Cairns etc., so anyone presenting with certain symptoms such as unexplained pain, rash, fever or fatigue will be tested (mainly signs of post viral syndrome / chronic fatigue syndrome).

Believe it or not, a vaccine was developed sometime in the '80s but it was not "considered financially viable to manufacture". They'll be wishing they did now.

Sorry to ramble on about it.
Last edited by Lara; 08-08-2015 at 11:34 PM.
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Old 08-08-2015, 11:22 PM #28
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Thanks for the support. Yes good one to rule out. Like most may never get an answer. Will be good to get the PET scan out of the way and maybe some answers there.
Thanks again.
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Old 08-10-2015, 01:00 PM #29
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Quote:
Originally Posted by PhilfromOz View Post
Just back from my GP. Went back to him with new pain in my groin, (like a knife) had this for a week. Told him of the nerve pain in my top teeth and also the numbness on a small section of my lips. Funny these are all on the left side, however Pain, Tingling, Numbness and Burning are on both sides of my body, but below my knees.

All blood test are now back, and yes all clear like a lot of you guys.
Yes I think he has covered everything I have seen on here, from B12, diabetes, immune diseases, toxin checks, mercury, lead so on so on, Thyroid many many others. He has been great emailing me the lab reports.

He is trying to speed up my appointment with the neurologist to get a PET scan and has tried a referral to another Neurologist that might be able to get me in quicker than the 2 month appointment I currently have.

I think he is concerned at how my symptom's are worsening and indeed spreading.
As I am currently on 75mg Lyrica he has said to double that to 150mg per day and after a week or so go to 210mg if I'm still not getting any relief.

Fun and games here and I'm fine just want to get to the bottom of it. A little mad however they didn't find anything in the tests, I was so sure there would be an underlying illness that would be obvious.

Hoping my teaching will continue into the future but unsure with how quickly these other areas have popped up in the past week and also with how the increase of Lyrica will effect me.

Sorry to vent. I'm so so aware of how worse off a lot of you guys are than me, and I'm very grateful for all your help and advice.

Phil
You have a great attitude. That goes a long way towards relief.
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