I'm fine dear, I have either worked through some of my pain issues or am in a remission for a time and truly feel death is no defeat for me. Besides the fact that everyone does it, it means I made it through all the challenges of time and material existence and am now going home for some much needed R&R.

I have grown emotionally and psychologically though all of this and I'm grateful I've had this reaction to such a horrific challenge. I feel kind of like a big success at times. I'm mostly calm and relaxed and I'm playing my ukulele and singing loud for at least a couple hours a day. That also deeply relaxes my body. My doc says he is very gratified that I have maintained a reason to get out of bed and live a life. He said he rarely sees that in this kind of disease situation even when it would be possible.

That's part of my treatment plan. Most of my "mistakes" have been when I was stressed out in the fear/panic mode.

Hi Canagirl,

I hope pain has calmed down and you are more comfortable.

I am very sorry the ER does not do enough to help your pain, even temporarily.

I hope your neurologist will be helpful to you.

Warmly,
DejaVu

Thanks. The pain in my head has calmed a tiny bit, but my burning/stinging body wide is out of control.

I think my head pain has something to do with muscles in my neck and back. Sitting in the car and moving with it when the car stops, accelerates, turns etc causes the intense pressure in my head to shift to other areas until my head is in normal position again. The. The pressure sits concentrated in the middle of my ( on the very top, then down behind nose and into roof of mouth). I want to stretch or massage these areas but I won't!! ( every time I try sonething I end up worse). Just going to medicate and hope for the best. Currently taking gabapentin ( upped), Advil, t3, flexeril and mj. Started all these yesterday ( except gaba and mj) hope they work soon.

I am sorry you are going through so much.
Take good care of yourself.
Warmly,
DejaVu

Sorry you are dealing with so much pain. I hope you can find some relief until you get to your Dr. appointment. Can he/she give you some "emergency medication" that you can have on hand in the event this happens again so you won't be in so much pain while waiting for an appointment. Not something you would take all the time, but something that would be short term and not be dangerous to take with your current meds.