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Old 08-09-2015, 07:54 AM #1
canagirl canagirl is offline
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Default Question for those with sfn and large fiber

If u have both large and small fiber can u tell the diff in pain and symptoms?
For the last few weeks the burning in my hsnds, feet and lower arms is intense and feel different. ITs not the sunburn burn but a deeper burn that also comes with horrific pins and needles. Does this represent large fiber damage? My emg in feb only showed carpel tunnel, but I'm positive there's damage
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Old 08-09-2015, 08:14 AM #2
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Trying to stay calm but I'm really stressing and panicking. I know everybody flares but has anyone had a severe burning spread for a few weeks then withdraw?
Ps I've had tingling all along but this is a crazy burning pins And needles/ tingling deeper burn ( not a surface suburn type burn)
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Old 08-09-2015, 09:13 AM #3
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I don't know if anybody has the answer to this... But others in here seem to describe their burning and other symotoms as waxing and waning or not all present at the time all over their bodies. Mine is always there in every fiber all over all at the same time. For example , my burning and stinging feels like I'm in a tight bodysuit.( head to toe) that is on fire. Constably. Why is that? What don't my symptoms come and go or wax and wane? Why are they so fierce all the time ? And all at the same time. For goodnes sake even my tongue is burning
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Old 08-09-2015, 09:35 AM #4
Susanne C. Susanne C. is offline
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I have severe SFN and LFN, as a result of CMT (hereditary sensorimotor neuropathy). With almost no sensory feeling left in my feet and legs distinguishing between the two is difficult, but I assume the burning and stinging pain is caused by the SFN. The strong, sharp pains in my legs and the constant ache is probably from the weakened muscles trying to carry the load. I have visible muscle wasting, but this is from a long standing disease process from childhood.
I am also one of the people here with all over body burning. I am currently having a flare of this, just sitting or lying down is uncomfortable - contact with the furniture burns, even if I put a soft blanket down, most of my clothes burn my skin, and my hands lying in my lap or one leg touching the other hurts. It is very distracting and uncomfortable, even painful to the point of making me pace the floor. Having constant consciousness of all over skin burning is a crazy-making situation, I do understand.
The first time this happened I told the doctor and we tried withdrawing my opiates, which had no effect on the burning but pushed the pain and sleeplessness through the roof. Then we thought it might be changing gabpentin manufacturers. Nothing made any difference. After a few months the burning contracted to my left thigh which has remained extremely sensitive. This pattern repeats every so often. I am not sure if it is affected by the weather or hormones, but it is particularly bad this time. I do not believe there is any treatment beyond trying to make yourself as comfortable as possible, choosing clothes with care, and keeping cool. I do find that if I get warm it is worse. It has lasted for several months at a time.
I believe this to be a symptom of SFN.
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Old 08-09-2015, 10:29 AM #5
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Quote:
Originally Posted by Susanne C. View Post
I believe this to be a symptom of SFN.
True enough.
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Old 08-09-2015, 01:47 PM #6
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Thanks Suzanne. It's reassuring to hear that your burning subsides at times. It's horrrible that it's a cycle though. I hope mine will subside for a tine
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