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Old 08-16-2015, 02:26 PM #1
mountaingirl6179 mountaingirl6179 is offline
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Join Date: Jul 2015
Posts: 11
8 yr Member
mountaingirl6179 mountaingirl6179 is offline
Junior Member
 
Join Date: Jul 2015
Posts: 11
8 yr Member
Default Anyone having a rapid acceleration SFN? Help...

Hi all, I was diagnosed by a neurologist last month with small fiber neuropathy. My symptoms seem to be accelerating more quickly than I would have thought and it's scaring me. It started with numbness and some pain in my feet and low back last February and numbness is already traveling up both legs with severe pain in both feet and legs. My hands now hurt with some tingling and burning. One day I accidentally ran out of my gabapentin and I had a nightmare night of pain which included burning/ichting all over my scalp and face. So, as this all started last winter with some annoying numbness in my feet, it is now already affecting all my limbs and is traveling up my limbs it seems. I thought this disease was supposed to progess slowly over time? Also, I am on gabapentin 2400mg and tegetrol 600 mg. Both of these meds have helped enormously, but after a week or two at a new dose I seem to get used to it and they both need to be adjusted upward again? How is this going to end up? My neurologist can seem to answer this. Anyone else have what seems to be a rather rapid progression of SFN symptoms and drug tolerance? Thank you...
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