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Old 08-17-2015, 08:40 PM #1
mindovermatter mindovermatter is offline
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mindovermatter mindovermatter is offline
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Originally Posted by Healthgirl View Post
I can tell you from my experience that my onset was slow and then very rapid. It started with heart palpitations, insomnia, digestive issues, orthostatic hypotension, vertigo..
My left foot and leg would go numb from sitting positions and my left hand had a vibrating feeling. This all lasted about a year and then suddenly last September, I started have shooting nerve pain from my neck to my arms and I couldn't move my neck. By November it spread to my legs and my whole body. The pain was excruciating, buzzing, vibrating, muscle spasms, tinnitus. I couldn't move or stay still I was a terrible mess.... and the autonomic symptoms became worse. So, I was like this for 4-5 months. I couldn't drive, or do anything. Could barely eat. By Jan/Feb I could drive short distances very carefully. I am now functioning, but it is hard. Some days are better than others. When I look back though- I'll take it.
It's great to see news of progressive healing. What do you think is making you better, Healthgirl?

And sorry to hear about your symptoms mountaingirl! Mine started last winter too and has progressed to (hopefully) it's peak this month. Aches and shocks, especially worse at night. What started on my right toe is now affecting all limbs and my face.

Here's hoping it goes away as it sneaked up on us.
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Old 08-18-2015, 06:27 AM #2
Healthgirl Healthgirl is offline
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It's great to see news of progressive healing. What do you think is making you better, Healthgirl?



Here's hoping it goes away as it sneaked up on us.
Yes, I am hoping everyday. I am not better- but improved from my worst state. I can now have some happy moments in between the symptoms. I can't say what made me improve. It seemed to run a terrible course and I can only hope and pray that I won't go back to the state I was in. My body is fighting this and trying to fix the damage, but what ever is going on seems to reattack when things seem to be calming down and keeps me from getting better. I want to run around with my kids, but I have to move like an old lady because of the pain and autonomic stuff. I was very active a year ago and it makes me sad.
Still, I will not give up and know something has caused this. The hardest part of all of this is the mindset. It is very hard not to let it get you down. The right attitude is huge for coping. When I find myself feeling sad that I can't do the things I could do, I remind myself that I too many other blessings to count. Not easy sometimes, but important to take it one day at a time.
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