Guten Tag! Aloha! Hola! Hej! ..........

to everyone (& if I've not included 'your' greeting, apologies, I've never been good @ languages)

I only found NeuroTalk recently & am looking forward to wandering around its highways & byways. I guess like others before me I hope to discover a few 'tricks' & ideas to make life a bit easier – ever the optimist!

Firstly, I'd like to say a big Thank You to DocJohn for getting things started & to the many others (e.g. in the Community Support Team & members) who must be working hard to ensure that NeuroTalk functions well.

A little about me. I'm in England (approx. 3,500 miles north-east of New York) & - shock, horror – not a villain, despite Hollywood casting all 'Brits' as villains.

As far as I know, I've never met or seen anyone with my particular N.P. problems: numbness (no pain) in feet & lower legs. Hopefully, will get to know & learn from others in a similar situation or with background knowledge

Have tried Gabapentin – didn't work for me - & currently building-up dosage of Pregabalin (no help so far). The only thing that helps is raising my legs to a horizontal level & having a couple of glasses of nice wine (purely for medicinal purposes )

Wishing everyone success in their personal battles against N.P. & other illnesses

DavidA

P.S. 'Super Mod' Lara suggested I also post my introduction in the PN Forum. Hope I got it right!

Sean Bean may play a mean villian, but hence forth he is always honourable Eddard Starkto me. I even went yourhonorable to proper welcome.

Look at that!

Doesn't the wine affect you negatively the next day?

My best,

Jon

Jon, Thank you for your welcome
Even tho' I'm a big drinker I never have any morning-after-the-night-before regrets
Best regards
David

P.S. When I say 'big drinker' I mean I'm 6'4" (1.93m) & can just about manage half-a-bottle of wine before falling asleep
P.P.S. I really must get-round to watching Game of Thrones; heard so many good reports of it. Having read some of the books quite a while ago I was uncertain how well they would be presented

Welcome! I like your sense of humor! I've always thought the "Brits" have some of the best comedy shows on TV. As to your question, I don't have that particular symptom but I am sure there are some on this board that do and I know I have seen it under symptoms of PN. You are lucky you can drink wine. For many of us it triggers our symptoms.

Thanks Pinkynose (there's obviously a story behind such a name)

re: the sense of humour, life's too short to take too seriously

I had no idea that alcohol could trigger symptoms. Perhaps I'd misunderstood the response from KnowNothingJon earlier. If so I'd better change my name to DavidKnowsEvenLessThanNothing!

David

Thanks for the chuckle david, aka DavidKnowsEvenLessThanNothing!
I look forward to reading future posts! I actually stole the name Pinkynose from my female cat and yes there is a story.....

Hello.. and welcome.
I was curious as to why you are taking gabapentin if you do not have any pain. My symptoms are numbness and weakness in the lower legs, no pain .

David,

Just wanted to say Hi, I'm a little NE of you.

You can learn a lot here from our fellow Members, I have in my time here. Be sure to make full use of the Forums and the Stickies.

Dave.

Hi northerngal,

Really good to hear from you; I think you're the 1st person I've 'met' with similarish symptoms to mine. I do hope you've found a few things to help you.

Re the Gabapentin: the cause of my P.N. is unknown after all manner of tests. I do not have pain but the neurologist thought it was worth trying, tho' it sounded like a bit of a 'long shot' (ie unlikely to ease symtoms of numbness in feet & lower legs) & it proved to be of no help. I'm currently taking Pregabalin which I think, is the 'last throw of the dice'. So far it has not eased the symptoms but the dosage is being slowly increased every 2 weeks; time will tell if it can offer any help - one lives in hope!

Over the next few weeks I'm going to check-out the site to see if anyone has had any success with supplements or TENS machines or..............anything. I know very little about P.N. - my 'coping strategy' was to try & put it to the back of my mind & get on with life. As a coping strategy it was on a par with some of Homer Simpson's really dumb ideas.

The 1 little success I've had so far is with driving. Nowadays I drive very little but a friend has loaned me his car – a BMW 5-series – whilst he's on holiday. In his car I'm almost in a 'lying down' position - unlike my own, a Renault Scenic, where I'm very upright - & whilst it doesn't totally solve the problem of numbness whilst driving it does seem to make things easier. I wonder if you've had similar problems & found your own solution?

My very best wishes to you & everyone faced with horrible life-affecting conditions

DavidA

Hi David, I am also new here. I have got SFN with numbness and not pain (just burning, tingling..) and some autonomic symptoms.
I haven't found yet a treatment for the numbness. It seems that a healthy nutritioun and antioxidents helped me with many others symptoms, I don't know whether it affected the numbness.