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Old 08-18-2015, 04:47 PM #1
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Originally Posted by Ragtop262 View Post
Hi pinkynose,
I'm glad your feeling better. My symptoms do wax and wane, and the types of sensations change as well. After reading everyone else's experiences for a few months now, that seems pretty typical.

It seems that PN is one of those things that once you have it, you really shouldn't ever consider yourself "cured" - although you may go into "remission".

Just enjoy every day to whatever extent your current symptoms will allow. If nothing else, that will reduce your stress level - which seems to be powerful medicine for many.
I found out a few nights ago that my twitching and night time symptoms hadn't really stopped on their own. I tried an experiment with my medication and I realized that the twitching, pins and needles, burning were still present, I had just been able to sleep through it. I was disappointed but I am grateful for this info as I have this to share with the specialist I see next month. I have begun to stop dwelling on being cured and have begun to enjoy my days instead.
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Old 08-18-2015, 10:10 PM #2
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I have begun to stop dwelling on being cured and have begun to enjoy my days instead.
I think many of us need a little more of that attitude
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madisongrrl (08-18-2015), northerngal (08-18-2015)
Old 08-18-2015, 10:55 PM #3
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I think many of us need a little more of that attitude
Easier said than done sometimes.
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Old 08-19-2015, 11:41 AM #4
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Easier said than done sometimes.
Ain't that the truth beatle! When I'm up to it I try to "Act As IF." Then you become as if, if that makes sense. I think they call it fake it to you make it. I had such a bad night last night that I don't have it in me to even act. I totally get it.
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Old 08-19-2015, 06:09 PM #5
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I don't have it in me to act either, not a lot these days. Unfortunately, it might translate as laziness to some...but I only wish that were the case.
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