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Old 09-03-2015, 01:41 PM #1
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Originally Posted by dogwalker View Post
I asked my neurologist if my twitching meant that I had motor nerve involvement now in addition to sensory and autonomic SFN. She said, "not necessarily; twitches can be from lots of things." My nerve conduction velocity was normal but the EMG showed chronic reinnervation, which she explained was nerve damage followed by "sprouting" of fibers from nearby nerves to compensate for the deficit. Later she mentioned that there are just a limited number of muscles and nerves that are large enough and close enough to the skin for testing, and that there could be motor nerve damage in other inaccessible areas. So, a little more information but not really a definitive answer to the question.
Thanks for the follow-up. Your right though - that information doesn't really clear anything up. A lot of people seem to have twitching and cramping along with SFN. In my case, it was the first symptom. Taking gabapentin controlled it, and now it has mostly stopped. Not sure what would happen if I quit the gabapentin though. I do know the pain increases significantly if I miss a dose, but not sure about the twitching
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Old 09-04-2015, 08:54 AM #2
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Originally Posted by Ragtop262 View Post
Thanks for the follow-up. Your right though - that information doesn't really clear anything up. A lot of people seem to have twitching and cramping along with SFN. In my case, it was the first symptom. Taking gabapentin controlled it, and now it has mostly stopped. Not sure what would happen if I quit the gabapentin though. I do know the pain increases significantly if I miss a dose, but not sure about the twitching
Hi Ragtop262. As you know twitching was my 1st symptom too. I stopped my sleeping meds 2 nights ago and realized my middle of the night twitching had pretty much stopped. I did get a pre-twitching feeling one night but I got up and stretched and it was gone. It's only been 2 nights and I know I must wait longer before I get excited. I'm thinking the gabapentin has controlled it. I don't know how much it helps my burning and would love to stop the drug but I'm not ready to face the possible consequences.
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Old 08-18-2015, 06:53 AM #3
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Originally Posted by dogwalker View Post
I've had sensory and autonomic SFN for 3 years and for about the last 6 months twitching just like you describe. Sometimes strong and slow, other times fluttery. In random places except at times they've been in just one specific place for several weeks. I also get a spasm on the same side side of my neck frequently, but it's mild. My neurologist just said it's all consistent with SFN when I mentioned it. It seems like this would indicate motor nerve involvement. I plan to ask her more about it on my next appointment in a couple weeks.
Hi Dogwalker, Please give us an update on what your doctor says about this. I will also ask at my next appointment.
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Old 08-18-2015, 09:15 AM #4
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Hello,
I have muscle twitching and sometimes jerking. Spasms happen in my arms and legs. I have SFN all over confirmed by skin biopsy. Lots of pain too.
HTH.
baba
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Old 08-31-2015, 04:02 PM #5
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I suffer from the muscle twitches as well. My EMG in jan was abnormal but that was all upper body and blamed on my neck which has been stable since surgery in 2012 however now my lower body part of EMG was abnormal. I askedy neurologist when I saw her about it . I got the impression that it wasn't a good thing. I'm hoping the DRS. at Hopkins know more
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Old 08-31-2015, 05:22 PM #6
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Symptoms of motor neuropathy can cause twitching and also muscle weakness & muscle wasting. I have not found any online source that includes it as a symptom of SFN.

I am going to a neuropathy specialist on 9/8 and I have included this in my list of questions. I will get back to you guys with whatever I find out.
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Old 10-02-2015, 06:53 PM #7
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I have jerking and shaking more so on my weak left arm and leg. I also have buzzing on and off in both legs. I have not any pain.....just tons of discomfort from intense pressure and shaking. I cannot ever get comfortable!!!!! I have SFN. Let us know!
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Old 09-04-2015, 08:15 AM #8
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Default Muscle twitching

This May I had a terrible fall & broke both tibula & fibular bones in my right shin. This fall has changed my life in so many ways. In result of this fall, not only have I was been "blessed" (for lack of a better word) with neuropathy & these muscle twitching episodes. They are the most annoying things, as all of you know. Luckily, I started taking a supplement loaded with B vitamins. On top of taking these supplements I also get B-12 shots regularly. In the past several days or so I have noticed that the twitching has more or less subsided. I'm not sure if the supplements had anything to do with it or not. I videoed my hands working up a storm when I was on my computer, so when I saw the Neurologist he told me I those were tremors. Lucky me. First neuropathy now this. Well like I said they have subsided quite a bit. Has anybody tried taking B vitamins for this?
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Old 09-04-2015, 09:48 AM #9
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It could be as simple as a magnesium, calcium or potassium insufficiency or deficiency. I eat a banana when it happens and many times the twitches will stop. I stay on top of the magnesium and calcium, because I've tested low, and most muscle spasms and twitches have gone away.
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Old 09-08-2015, 06:49 PM #10
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Quote:
Originally Posted by Healthgirl View Post
From everything I have read, I find all symptoms for SFN to be sensory and autonomic. For almost a year, I have twitching in random parts of my body coming and going all day. Sometimes they are strong and slow and sometimes very fluttery and fast. I have terrible muscle spasms in my neck and shoulders which seem to throw my whole cervical and thoracic spine surrounding muscles into a crisis. I have had the complete spine and brain MRI, but my muscle symptoms are not consistent with SFN. My doctor has be diagnosed on paperwork with progressive polyneuropathy and he is very mild with treatment (which I like and don't like). Icaught a bunch of the crazy twitching on my phone video and showed him and he just said "Hmmm". I think he knows more than he tells me, but doesn't want me to lose hope.
Hi Healthgirl,
I have twitches also that come and go and I was diagnosed with sensori polyneuropathy. The twitches are not every day seems to happen when my sugar is high or not feeling well. Today I am paying with the feeling of a pair of boots and burning like a bad sun burn had the twitching when I was trying to sleep, had to much Labor Day Celebration.:
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