Muscle twitching, jerking, spasms with small fiber neuropathy
 

From everything I have read, I find all symptoms for SFN to be sensory and autonomic. For almost a year, I have twitching in random parts of my body coming and going all day. Sometimes they are strong and slow and sometimes very fluttery and fast. I have terrible muscle spasms in my neck and shoulders which seem to throw my whole cervical and thoracic spine surrounding muscles into a crisis. I have had the complete spine and brain MRI, but my muscle symptoms are not consistent with SFN. My doctor has be diagnosed on paperwork with progressive polyneuropathy and he is very mild with treatment (which I like and don't like). I caught a bunch of the crazy twitching on my phone video and showed him and he just said "Hmmm". I think he knows more than he tells me, but doesn't want me to lose hope.

I have muscle twitching... Worse than anyone here has described. It's literally 24/7 I get hundreds in a second all over my body ( at the same time). Mine are like u describe but also long, like the muscle will start the twitch at the top of my thigh and end at the bottom. I also have constant muscle spasms in my upper back ( area between shoulder blades) and sometimes my neck. I have only been diagmosed with sfn. Although my neuro wants to repeat my emg this month. I also jerk a lot, somedays worse than others, some days I only jerk at night while I'm trying to sleep other days I do it while awake too.

Progressive poltneuropathy... Did your emg show anything?

I had two, one showed left ulnar compression and the other was normal.
I'll probably have to have another one in a few months.

I just posted a thread on Leg Twitching before I saw this.... My twitching is only in my legs and usually 1 at a time. They would happen most every night between 12pm-2am if I didn't medicate. They sometimes feel more like muscle pulling. For me this is worse then my other symptoms as it doesn't allow me to sleep. I am going to speak to the neurology specialist that I finally got an appointment with on 9/8. If I find out anything I'll let you know.

I've had sensory and autonomic SFN for 3 years and for about the last 6 months twitching just like you describe. Sometimes strong and slow, other times fluttery. In random places except at times they've been in just one specific place for several weeks. I also get a spasm on the same side side of my neck frequently, but it's mild. My neurologist just said it's all consistent with SFN when I mentioned it. It seems like this would indicate motor nerve involvement. I plan to ask her more about it on my next appointment in a couple weeks.

Dogwalker: I know lots of us with SFN have described various types of twitching and cramping. But, I've wondered the same thing you have, about whether this indicates motor nerve involvement.

Please let us know if you get any information about this from your upcoming neuro visit.

Hi Dogwalker, Please give us an update on what your doctor says about this. I will also ask at my next appointment.

yes
 

Hello,
I have muscle twitching and sometimes jerking. Spasms happen in my arms and legs. I have SFN all over confirmed by skin biopsy. Lots of pain too.
HTH.
baba

I suffer from the muscle twitches as well. My EMG in jan was abnormal but that was all upper body and blamed on my neck which has been stable since surgery in 2012 however now my lower body part of EMG was abnormal. I askedy neurologist when I saw her about it . I got the impression that it wasn't a good thing. I'm hoping the DRS. at Hopkins know more