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-   -   Muscle twitching, jerking, spasms with small fiber neuropathy (https://www.neurotalk.org/peripheral-neuropathy/224670-muscle-twitching-jerking-spasms-fiber-neuropathy.html)

February 09-04-2015 09:48 AM

It could be as simple as a magnesium, calcium or potassium insufficiency or deficiency. I eat a banana when it happens and many times the twitches will stop. I stay on top of the magnesium and calcium, because I've tested low, and most muscle spasms and twitches have gone away.

pinkynose 09-08-2015 04:29 PM

What little I found out at appointment
 
I just came back from my appointment and I didn't get much information out of the neurologist, surprise, surprise... He told me I had benign fasciculations which were causing the twitches, not PN. I pressed him so I could bring back some info for you guys and IF I understood him he said twitches were a sensory symptom and that thin fibers caused the burning and thick fibers caused all the other sensory symptoms. Not sure I follow that. Maybe MrsD can make sense of it.

mrsD 09-08-2015 05:49 PM

I hate to say this, but some doctors do make stuff up. :rolleyes:

uglogirl 09-08-2015 06:49 PM

Twitching
 
Quote:

Originally Posted by Healthgirl (Post 1163314)
From everything I have read, I find all symptoms for SFN to be sensory and autonomic. For almost a year, I have twitching in random parts of my body coming and going all day. Sometimes they are strong and slow and sometimes very fluttery and fast. I have terrible muscle spasms in my neck and shoulders which seem to throw my whole cervical and thoracic spine surrounding muscles into a crisis. I have had the complete spine and brain MRI, but my muscle symptoms are not consistent with SFN. My doctor has be diagnosed on paperwork with progressive polyneuropathy and he is very mild with treatment (which I like and don't like). Icaught a bunch of the crazy twitching on my phone video and showed him and he just said "Hmmm". I think he knows more than he tells me, but doesn't want me to lose hope.

Hi Healthgirl,
I have twitches also that come and go and I was diagnosed with sensori polyneuropathy. The twitches are not every day seems to happen when my sugar is high or not feeling well. Today I am paying with the feeling of a pair of boots and burning like a bad sun burn had the twitching when I was trying to sleep, had to much Labor Day Celebration.:

Albertakewl 09-18-2015 06:05 PM

I did have tingling,twitches,jerking. And now swollen ankles and feet and a feeling of I am wearing something on my lower legs and lower arms. Feels like it's all up my left side now, if I run the top of my left foot . You can feel the tingling . I was on effexor for the problems and my so called aniexty that I didn't have , I have seen an internist, nueroligist and a couple useless drs. I've had 2 Mri , and nothing. And a nerve conduction test. ThY refuse to do N emg or other test because they say it's no nueropathy. He said my Brain was irritates, I wonder if it's sfn.

onebeed 09-29-2015 09:32 AM

Muscle twitching
 
I also have developed muscle twitching in the last month or so in my legs. The neuropathy seems like it is getting a lot worse. It used to be just my feet, now I have stabbing in my ankles and the pain is halfway up my calves. My muscles have started twitching and my calves feel like they are cramping. I take magnesium citrate. The pain has gotten so bad that I can't sleep at night. Also started new weird sensations like water dripping up my legs.

pinkynose 09-29-2015 12:04 PM

Quote:

Originally Posted by onebeed (Post 1174290)
I also have developed muscle twitching in the last month or so in my legs. The neuropathy seems like it is getting a lot worse. It used to be just my feet, now I have stabbing in my ankles and the pain is halfway up my calves. My muscles have started twitching and my calves feel like they are cramping. I take magnesium citrate. The pain has gotten so bad that I can't sleep at night. Also started new weird sensations like water dripping up my legs.

My neuropathy started with twitching which my neurologists insist are benign fasciculations. Truthfully I don't care what they call it as long as it stops because they made it impossible to sleep. I had the burning and all the other sensations you are describing but at the beginning they were not as much an issue as they later became. I am on Gabapentin but I am looking to get off it. Some people are helped by it. I am looking for a doctor to prescribe a topical with Gabapentin and other ingredients that I can use as needed instead.

Some things to try:
Slow Mag (1 in the morning and 1 at night with a meal)
Morton's Epsom Lotion
Aspercreme with Lidocaine (some people prefer Menthol instead)

Check some of the threads on topical creams and supplements. There is a wealth of information. I hope this helps.

Irina 09-29-2015 06:09 PM

pinkynose, you mentioned about stopping your sleep med and noticing change in twitching. Can you tell me how are you doing now? I also take sleeping pill (ambien) and wonder it some of my symptoms, including twitching, from it. Thanks.

pinkynose 09-29-2015 08:05 PM

Quote:

Originally Posted by Irina (Post 1174412)
pinkynose, you mentioned about stopping your sleep med and noticing change in twitching. Can you tell me how are you doing now? I also take sleeping pill (ambien) and wonder it some of my symptoms, including twitching, from it. Thanks.

Hi Irina
I'm doing pretty well being off Ambien. When I took the drug I would sleep 6 hours but then I'd be awake. Most nights now I will wake up more frequently but fall back asleep. Overall I am getting more hours of sleep most nights. I do not have the same feeling of tiredness the next day that I often had with the drug.

All my symptoms including twitching began lessening the 2nd day after I was off the drug. Burning was the one sensation that improved the most and all have been less until a recent flare. During that flare the days weren't so bad but the nights were intolerable especially psychologically because I thought I was on the mend.

Because my flare was upsetting me so badly I gave in and took an Ambien one night in order to escape. The next day my daytime sensations were awful. I hope to remember that so I don't do it again but I know I'm human and sometimes I just need out. At least i know what to expect now when I do.

Everyone is different and I don't know if quitting Ambien will improve your symptoms. I was on the drug off and on for 20+ years and it's not meant for long term use. I totally get what it's like not being able to sleep. Good luck!

KateKline 10-02-2015 06:53 PM

I have jerking and shaking more so on my weak left arm and leg. I also have buzzing on and off in both legs. I have not any pain.....just tons of discomfort from intense pressure and shaking. I cannot ever get comfortable!!!!! I have SFN. Let us know!


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