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08-17-2015, 06:21 AM | #1 | ||
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From everything I have read, I find all symptoms for SFN to be sensory and autonomic. For almost a year, I have twitching in random parts of my body coming and going all day. Sometimes they are strong and slow and sometimes very fluttery and fast. I have terrible muscle spasms in my neck and shoulders which seem to throw my whole cervical and thoracic spine surrounding muscles into a crisis. I have had the complete spine and brain MRI, but my muscle symptoms are not consistent with SFN. My doctor has be diagnosed on paperwork with progressive polyneuropathy and he is very mild with treatment (which I like and don't like). I caught a bunch of the crazy twitching on my phone video and showed him and he just said "Hmmm". I think he knows more than he tells me, but doesn't want me to lose hope.
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08-17-2015, 06:56 AM | #2 | ||
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I have muscle twitching... Worse than anyone here has described. It's literally 24/7 I get hundreds in a second all over my body ( at the same time). Mine are like u describe but also long, like the muscle will start the twitch at the top of my thigh and end at the bottom. I also have constant muscle spasms in my upper back ( area between shoulder blades) and sometimes my neck. I have only been diagmosed with sfn. Although my neuro wants to repeat my emg this month. I also jerk a lot, somedays worse than others, some days I only jerk at night while I'm trying to sleep other days I do it while awake too.
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08-17-2015, 06:57 AM | #3 | ||
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Progressive poltneuropathy... Did your emg show anything?
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"Thanks for this!" says: | DejaVu (08-31-2015) |
08-17-2015, 07:04 AM | #4 | ||
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"Thanks for this!" says: | DejaVu (08-31-2015) |
08-17-2015, 09:11 AM | #5 | |||
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"Thanks for this!" says: | DejaVu (08-31-2015), Healthgirl (08-17-2015) |
09-08-2015, 04:29 PM | #6 | |||
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I just came back from my appointment and I didn't get much information out of the neurologist, surprise, surprise... He told me I had benign fasciculations which were causing the twitches, not PN. I pressed him so I could bring back some info for you guys and IF I understood him he said twitches were a sensory symptom and that thin fibers caused the burning and thick fibers caused all the other sensory symptoms. Not sure I follow that. Maybe MrsD can make sense of it.
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"Thanks for this!" says: | madisongrrl (09-19-2015), mrsD (09-08-2015) |
09-08-2015, 05:49 PM | #7 | |||
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I hate to say this, but some doctors do make stuff up.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | pinkynose (09-08-2015) |
08-17-2015, 09:46 AM | #8 | ||
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08-17-2015, 03:35 PM | #9 | ||
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Please let us know if you get any information about this from your upcoming neuro visit. |
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09-01-2015, 11:43 PM | #10 | ||
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"Thanks for this!" says: | KnowNothingJon (09-03-2015), pinkynose (09-02-2015) |
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