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08-17-2015, 06:21 AM | #1 | ||
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From everything I have read, I find all symptoms for SFN to be sensory and autonomic. For almost a year, I have twitching in random parts of my body coming and going all day. Sometimes they are strong and slow and sometimes very fluttery and fast. I have terrible muscle spasms in my neck and shoulders which seem to throw my whole cervical and thoracic spine surrounding muscles into a crisis. I have had the complete spine and brain MRI, but my muscle symptoms are not consistent with SFN. My doctor has be diagnosed on paperwork with progressive polyneuropathy and he is very mild with treatment (which I like and don't like). I caught a bunch of the crazy twitching on my phone video and showed him and he just said "Hmmm". I think he knows more than he tells me, but doesn't want me to lose hope.
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08-17-2015, 06:56 AM | #2 | ||
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I have muscle twitching... Worse than anyone here has described. It's literally 24/7 I get hundreds in a second all over my body ( at the same time). Mine are like u describe but also long, like the muscle will start the twitch at the top of my thigh and end at the bottom. I also have constant muscle spasms in my upper back ( area between shoulder blades) and sometimes my neck. I have only been diagmosed with sfn. Although my neuro wants to repeat my emg this month. I also jerk a lot, somedays worse than others, some days I only jerk at night while I'm trying to sleep other days I do it while awake too.
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08-17-2015, 06:57 AM | #3 | ||
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Progressive poltneuropathy... Did your emg show anything?
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"Thanks for this!" says: | DejaVu (08-31-2015) |
08-17-2015, 07:04 AM | #4 | ||
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"Thanks for this!" says: | DejaVu (08-31-2015) |
08-17-2015, 09:11 AM | #5 | |||
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Quote:
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"Thanks for this!" says: | DejaVu (08-31-2015), Healthgirl (08-17-2015) |
08-17-2015, 09:46 AM | #6 | ||
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Quote:
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08-17-2015, 03:35 PM | #7 | ||
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Please let us know if you get any information about this from your upcoming neuro visit. |
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08-18-2015, 06:53 AM | #8 | ||
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08-18-2015, 09:15 AM | #9 | ||
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Hello,
I have muscle twitching and sometimes jerking. Spasms happen in my arms and legs. I have SFN all over confirmed by skin biopsy. Lots of pain too. HTH. baba |
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"Thanks for this!" says: | DejaVu (08-31-2015) |
08-31-2015, 04:02 PM | #10 | ||
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I suffer from the muscle twitches as well. My EMG in jan was abnormal but that was all upper body and blamed on my neck which has been stable since surgery in 2012 however now my lower body part of EMG was abnormal. I askedy neurologist when I saw her about it . I got the impression that it wasn't a good thing. I'm hoping the DRS. at Hopkins know more
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"Thanks for this!" says: | DejaVu (08-31-2015) |
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