You really need to consider the rheumy...in conjunction with seeing the neuro. They need (and will in most cases) to work together when it is an autoimmune process causing the neuropathy.

Do you know what labs have been done? Have they done CRP and ESR? I ask because both of these are markers for inflammation. It is possible that your axonal swellings could be from inflammation, as well as your joints, and even your low grade fevers. If it is, then a short course of steroids might help with multiple things...including the burning.

When you talk to the neuro, ask him/her for suggestion for a rheumy...they have a way of working better with other specialists that THEY recommend.

Are you being treated for your autonomic problems? In many cases they require yet another specialist (cardio) if you have BP and heart rate problems? What autonomic symptoms do you have? The low grade fevers can also be from autonomic...as temperature regulation is an autonomic function.

All these things are tied together and when you figure out which AI is root cause, then treatment options will be clear and you will finally get some relief.