[JoannaP79]

Originally Posted by canagirl

Healthboards neuropathy section.

Sorry, just like everyone else here I'm having a tough time. I can't picture the rest of my life. I was looking for other forums so I could find stories of healing. But just like on here, there doesn't seem to be any. ( I knoe glentaj has had some) . My nonstop vibrating and pulsing is driving me mad.

I know we all have different etiologies but I feel that ivig is the only thing yielding some hope. May be miniscule and may not help certain types such as genetically inherited but are most of you not fighting for access to this?? I am continually on at my neuro to refer me. I have the giant obstacle which is NHS and funding. I won't stop going on until I get a trial. I know it isn't the cure all but it just has to be tried where suspected autoimmunity surely?